Sorry had posted something somewhere else and never noted here. My GI called me Tuesday night. The CT shows no new narrowing at my TI original surgery site, but now he thinks it has spread to my colon. I have to have a scope 1/2/2013 so he can biopsy and see what is happening. The thing is I feel pretty lousy and I am still not eating much (but eggs and mashed potatoes are my friends). Still getting sharp pains so I sort of know what the answer is going to be. I also miss my cholestyramine----taking it right now is too much and causes pain, but coming to work every day and worrying about
the potty sprints sucks too.
I just think I could do another round of pred for a little longer and beat this thing. 6 weeks of pred seemed awfully short to me to give up on it. Doc is talking about "new meds". I was just stunned to hear it was now maybe in my colon that I went into duh mode and didn't ask what he meant. Is it big guns he's thinking, or changing mesalamines from pentasa to asacol or something else???
I have to get through two breakfast with Santa and the Mrs Saturday and a side visit (skipping an annual party that night) and afternoon as Mrs Claus with a separate event after Sunday. If the weekend is rough and still in pain by Monday, will call him back and ask for some pred to get thru. Was starting to feel better at 20mg.
I guess I am a little delayed...most docs have said this thing cycles in 10 year increments....I seem to be on the 11 year plan. I ruptured in 1990, had a nasty flare and pred in 2001 and now this year. I feel like crud but hey I still think I am one of the lucky ones
Had an honest conversation with my wonderful husband. Had just promised (as our anniversary gift to him) that we could start the addition on the house (he has wanted for 7 years now as that is his occupation and love). He was trying to be so gentle approaching the money worries if I am sick and if we should put a hold or if I even wanted to talk about it. We also were planning Hawaii in 2014 and Ireland in 2017---for our big birthdays...he realizes we have to be flexible there now too.