But hopefully it will be sorted soon - I'm feeling at death's door here
The main symptoms are horribly restless legs at nighttime, which seriously interferes with my sleep, and a frightening amount of breathlessness upon exertion. I can't walk any distance now without needing to stop and take a rest; I couldn't keep up with my 73-year-old mum in a shopping centre the other day, for crying out loud. That's not normal for me and I don't like it at all.
So I finally got a blood test done yesterday. Phoned up the IBD nurse this afternoon. Have to give her credit. I've called her useless in the past, but she was excellent today. She did sound rather miserable, but she always does when speaking to me - I think I'm "that patient." >_>
Got most of the results back - haemoglobin 8.6, ferritin 5, CRP 39 and ESR 28. (Forgot to ask about
B12, gah.) Ferritin is a measure of iron stores and 5 is pretty low - well below the normal range. I enquired about
iron transfusions. This required carefully explaining I could not have Cosmofer, 'cos I'd had an anaphylactic reaction to it in the past, but I could have Ferinject - that was okay! The nurse told me that the hospital didn't have Ferinject and she would have to speak to my consultant about
Cue mental banging head against the wall time. But, against all expectation, the nurse did ring back and she did say I could have Ferinject. Result! Last time I had a Ferinject transfusion, it literally cured my restless legs overnight. Hopefully it will cure my breathlessness too. Because honestly, even though I have active Crohn's with a stricture leaning towards partial obstructions, the anaemia is actually bothering me more at the moment.
Bonus question time: It's my birthday on the 19th January and hopefully will be going to see Life of Pi. I have not been to the cinema in years. If I have a stricture, would it be suicidally dumb or just normally dumb to get a box of popcorn? I adore the stuff...