Posted 1/14/2013 4:01 PM (GMT -7)
Hey guys, tentatively signed up so I could post on this forum because I'm having problems with my digestive system and have been for some time now.
I always had fairly normal bowel movements, and had never really been sick a day in my life until the back end of August 2012 - I was 21 at the time. I had some spicy food (which I have always eaten and never really had a problem with), and then I started with what I thought was flu symptoms - nausea and vomiting, shaking, aching and fever. Within a couple of hours I developed very severe diarrhea, and was in absolute agony, but my family was on holiday and I was home alone so I tried to sleep it off. They would have forced me to go to A&E waaaay sooner if they'd been there. The pain was excruciating, but I kept passing it off as a 24 hour bug, then a 42 hour bug, and so on, until I couldn't stand it anymore, I was terrified I might have appendicitis. Messing about phoning doctors and the NHS etc, I was finally convinced to head to A&E, where they gave me a nausea injection and some painkillers and sent me on my way. Within 3 hours I was admitted back to hospital.
(Attempting to cut a long story short...) I was kept in hospital 5 days. I was nil by mouth for 3 of those, which only stopped the diarrhea because there was no food in my system - I still felt a need to go to the toilet but there was only mucus. I had blood tests which confirmed severe inflammation. I then had a CT scan on the second day. When the consultant visited me to give my results he said (and I quote) "Your CT results show that you have an IBD, which could be either Crohn's or colitis, we don't know which yet but we'll give you a colonoscopy which should help identify what type of IBD you've got." I went for the colonoscopy, which was apparently only a little one that didn't go very far in, only looked at the very bottom of the bowel or something (I'm not sure exactly). This procedure was agonising, but the guy doing it said "It looks like you just have a bit of food poisoning. You're fine." Bear in mind that by this point I had been on antibiotics, steroids, anti-inflammatory stuff etc etc for 3 days and had no food or drink, so things may have started to "look better"? keep bearing in mind I really have no idea haha! I still had a high temperature that was being regulated with paracetamol.
When they finally sent me home, they gave me a very vague diagnosis saying "it appeared to be caused some bacteria in your gut that's not meant to be there, but we don't know how it got there. We're not ruling out Crohn's, so if you have another attack you probably have it." For weeks and weeks I was incredibly weak, always feeling ill, and horrifically constipated. I got asked if I was pregnant because my stomach was very bloated and actually shiny the skin was stretched so taut!
Since then I had another episode similar to the first - the fever, shaking aching, diarrhea and vomiting. I went to my GP who told me I just had a virus, and I'm probably just very susceptible to stomach bugs - even though I've never had one in my life. After that (which was in October) I've been basically okay, my temperature has never been right since really though (always very hot and sweaty) and my BM's have been very hit and miss.
In maybe the past month, I've started to become very very constipated again, I go maybe once, twice a week at the most. I feel constantly nauseated, especially when I eat, like my food is piling up on top of itself - I barely dare to eat. When I do it makes me burp, which then makes me vomit in my mouth. I have a bubbling feeling in my esophagus, in my lower abdomen, and in my lower back. I often feel like I need to go the toilet but with no success, and I constantly feel like there is a weight on my stomach, even when I'm hungry.
Obviously something isn't quite right, and never really has been since I was sent home from hospital, but I don't know what. Whenever I've been to the doctors they've passed it off as nothing major, but I feel unwell all the time and I'm really low on energy. I want to go back but I'm scared of them just saying "oh there's nothing wrong with you", which appears to be their general approach.
I'm just looking for a little support. All my friends and family say is "stop worrying, it will be nothing", which would be wonderful if it was nothing, but it doesn't feel like it. I'm also wondering if anyone else has experienced the same thing/symptoms/diagnosis issues etc? I'm really sorry for the essay, it's just starting to depress me massively, every time I go to the doctors I'm made to feel like a hypochondriac!
Thanks in advance, and sorry again!