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Desperately in need of a successfull DIET!

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Crohn's Disease
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Anarkali
New Member
Joined : Jan 2013
Posts : 8
Posted 1/16/2013 11:01 PM (GMT -7)
First of all: Because the Doctor's never bottered to care about my bowel pains, constipation etc. for over 15 years - I ended up with Histamine Intolerance as well. Whatsoever, I need some DIET suggestions because I can hardly eat anything at all anymore.

As for meat I eat only 8 oz. daily on a regular basis, it has to be boiled, my body wont tolerate it cooked in another way. If I eat anything else, I tend to get constipated and get a lot of pain.

I've tried bananas, apples, gluten free food, oat milk, soy milk, rice milk, boiled rice, fish, eggs, carrots, etc. But my body wont tolerate any of it. And regarding the Histamine Intolerance, it's even harder to find food - because I do also have to look for histamines in everything I consume, or else I end up with bloating, swelling, migraine, and a bunch more.

Because of the Histamine Intoleranse and the Crohn's I've lost over 130 lbs. That's probably good though, but I would love to eat something else than meat, again!

I will start fasting for 14 days, only consuming Boswella (30% AKBA), and 4.5 mg LDN on a daily basis.

I appreciate all replies! :)
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teddybearweiser
Veteran Member
Joined : Oct 2004
Posts : 3042
Posted 1/16/2013 11:50 PM (GMT -7)
Hi and Welcome to HealingWell, Sorry what you have been threw.
I really think you need to find a good doctor whom will listen to you and help you and not hinder you. Have you tryed ensure or boost?
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Anarkali
New Member
Joined : Jan 2013
Posts : 8
Posted 1/17/2013 12:43 AM (GMT -7)
Ensure and boost?

I've tried 4 different Doctor's, all are refusing to get it checked. So I dont know what to do! And the Doctor's even know that 2 more in my family have Crohn's Disease, but they couldn't care less, even if Crohn's can be genetic.
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stereofidelic89
Veteran Member
Joined : Sep 2011
Posts : 1993
Posted 1/17/2013 7:34 AM (GMT -7)
Anarkali, I would not go on a fasting, your body is already trying to flush out whats in there. This could lead to exhaustion and dehydration.

Supplement with an electrolyte drink, like Smart Water or Emergen-C packets.

Make chicken broth from scratch if you have to, the gelatin in the broth is very soothing and nourishing at the same time.

Maybe abstain from dairy and most grains at the moment, as well as sugars, refined carbs and sugary tropical fruits like mango, pineapple and oranges -these could wreak havoc on your already irritable tummy. Limit fiber too, maybe choose from sprouted bread or sourdough. Veggies in the form of juice (Lakewood organic) Super Veggie is what I drink.

Ensure is full of crap. The first four ingredients are water, sugar, corn syrup and maltodextrin -- all of which are refined carbs, and you are basically paying a ton of money for watered down sugar.

Hope you feel better.
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IamCurious
Veteran Member
Joined : Jan 2010
Posts : 3542
Posted 1/17/2013 8:12 AM (GMT -7)
Ensure and boost?

Ensure has milk and soy ingredients along with carrageenan. Not to mention Corn Maltodextrin and other crap. I would start out with a food that you absolutely sure is safe, such as chicken broth or apple sauce, until your inflammation dies down. Then gradually add other foods one at a time to determine if they are safe to eat.
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Miss_82
Regular Member
Joined : Jul 2006
Posts : 73
Posted 1/17/2013 8:36 AM (GMT -7)
Hi Anarkali,

Definitely not Ensure or Boost. That thing would always make me more sick even when im not flaring. Yuk!

In my personal opinion and experience chicken soup or broth cooked in ghee (clarified butter) is the best option for now. Also, mashed potatoes worked really well for me. Goat meat stew with potatoes boiled in there is also great and easy to digest. I wouldn't eat the meat but i would eat the soup with few bites of potatoes and a small piece of naan.
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11009
Posted 1/17/2013 10:42 AM (GMT -7)
Please don't do the fast for 14 days: if that means literally no food for a fortnight, that's dangerous! (Unless it's a medically supervised liquid diet involving high-calorie liquids.)

Ensure is overpriced crap, but it does have calories and added vitamins and minerals, is gluten and lactose free, and can be used in non-elemental liquid diets. The sugars are all absorbed high up in the bowel. That said, you still probably won't be able to tolerate it, but it's worth a try, imo. You can look for a 'purer' version - I think Absorb Plus is one - but they'll be even more expensive and ultimately I don't know if it makes much difference really.

Meanwhile, if you are having allergic reactions to that many foods, I really think you need to speak to a specialist about it. Not a naturopath or a nutritionist, they're not properly medically trained and could recommend a wacky and unsuitable diet regime. I suppose a dietitian would be the place to start... Or an allergy specialist, whatever they're called :-/
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Anarkali
New Member
Joined : Jan 2013
Posts : 8
Posted 1/17/2013 12:06 PM (GMT -7)
Thanks for all replies, I appreciate it! :)

Regarding Chicken broth, is it normal that it works like a Laxative? Or is this because of the Crohn's? I've tried Chicken broth before, and it's running right through me.

And for vegetables: Are there any vegetables that can be consumed if boiled? Like for example cabbage?
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11009
Posted 1/17/2013 1:04 PM (GMT -7)
Chicken broth doesn't have a known laxative effect. It's likely that it's the hot liquid which is stimulating your guts and that any hot liquid would have a similar effect. In highly active disease, anything can set your guts going, even bland or normally well tolerated foods.

Yeah, no reason why boiled cabbage can't be eaten.

Seems to me though your Crohn's is not under control? If I am right, endless tinkering about with diet probably won't get it under control if it's bad enough. Diet is used more as a maintenance sort of treatment rather than getting folks out of severe flare-ups (enteral nutrition - aka liquid diets - being the exception). What meds are you on for Crohn's?
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Anarkali
New Member
Joined : Jan 2013
Posts : 8
Posted 1/17/2013 1:15 PM (GMT -7)
The Crohn's has had mild breakouts through the years. But before I could manage it with only small healthy meals, and the flearups would disappear within 1 month or so. But now I've been constantly sick for 4-5 years, and I'm getting tired, losing weight, and are probably malnourished. No problems with vitamins or minerals though, the blood tests are GOOD, but too low B6, B9, B12.

I'm not on any meds at this time, as the Doctor's won't give me medicines. And they say I dont need it. I've tried 4 different DOctor's, all saying the same. And regarding a Crohn's Specialist - my regular Doctor have to send a paper stating that I need better help, but all 4 Doctor's refuse to do so. So I'm stuck!

But I will start with LDN, prescribed from a Doctor in another country. So I really hope the LDN will work!
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11009
Posted 1/17/2013 2:26 PM (GMT -7)
What the heck? Are they saying you don't need meds based on actual tests? If not, run and find new doctors who will do a colonoscopy, upper GI test, etc. And even if you are technically in 'remission', there's still a strong argument for being on maintenance meds anyway.

The LDN could work and I hope it does, but I don't think you can bank on it to be honest. People with Crohn's really ought to be under the care of a medical specialist, because it can be a complex disease with many things going wrong.
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Anarkali
New Member
Joined : Jan 2013
Posts : 8
Posted 1/17/2013 3:20 PM (GMT -7)
I had one Doctor, I met him for 15 minutes, and he said: "You're going to the Hospital immediately!". Then he sent a request to the Hospital for an x-ray of the bowel etc. The Hospital sent the request in return to my OTHER Doctor, Hospital asking for new request for Colonoscopy instead. The Doctor who got the request in return, refused to send a request for Colonoscopy, because I wasn't in need for that he stated.

Then Doctor who sent the first request for x-ray did quit at his practice. So now I have a new Doctor, but they didn't have any open appointments until February. So I'm still waiting. But atleast I hope he will do something drastic, quick.
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11009
Posted 1/17/2013 3:56 PM (GMT -7)
Eh, that sounds a mess. Have you got any convincing reason for going to ER? As an inpatient you can get access to some tests a lot more quickly than you can as an outpatient. Otherwise I'm not sure what to suggest, other than to travel further to see a different doctor who will request a colonoscopy.
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jk5493
Regular Member
Joined : Oct 2012
Posts : 118
Posted 1/17/2013 4:48 PM (GMT -7)
All I could recommend is finding a good dietition. They will be able to work with you to find foods that will not hurt your body and they may have a few more resources up there sleeves as far as food goes. Ask your PCP or GI for a referral to a good dietition, if they know of any. That might be a good place to start, Anarkali.

Jade
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Anarkali
New Member
Joined : Jan 2013
Posts : 8
Posted 1/18/2013 4:00 AM (GMT -7)
Can Mango be eaten at a flearup? I know it's a type of fruit, but I did see another Topic where they stated it were safe to consume Mango and Papaya. Any ideas?
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stereofidelic89
Veteran Member
Joined : Sep 2011
Posts : 1993
Posted 1/18/2013 3:33 PM (GMT -7)

NiceCupOfTea said...
Meanwhile, if you are having allergic reactions to that many foods, I really think you need to speak to a specialist about it. Not a naturopath or a nutritionist, they're not properly medically trained and could recommend a wacky and unsuitable diet regime. I suppose a dietitian would be the place to start... Or an allergy specialist, whatever they're called :-/


Really NCOT? Considering Naturopathic medicine is defined by the principles that underlie and determine its practice rather than by the substances used, like today's conventional medicine.

It is because a physical condition progresses to a diseased state that we have to use hardcore pharmaceuticals to get things under control and in balance.

--

Anarkali, choose wisely. Mango has a high sugar content, and is of tropical variety. If you find that it doesn't cause further irritation to your gut at this point in time, go for it.

Post Edited (stereofidelic89) : 1/19/2013 10:06:54 AM (GMT-7)

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ambling
Veteran Member
Joined : Feb 2011
Posts : 1027
Posted 1/18/2013 8:44 PM (GMT -7)
(Stereofidelic89 - I find your post offensive, and containing personal attack.)

There are many people who would agree that a specialist would be the best person to properly identify, through scientific testing, what food allergies may be present and exacerbating your condition.
There are some who may believe a Naturopath could be suitable for this testing, even though they rely upon unconventional methods not founded upon a doctrine of evidence based medicine.

Anarkali, the high fiber content of the mango may irritate you if your guts are inflamed.
Good luck with your journey.
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ann347
New Member
Joined : Mar 2013
Posts : 1
Posted 3/31/2013 11:39 PM (GMT -7)
In regards to chicken broth acting as a laxitive... YES it can if you have a maltodextrin intolerance like me. I was on the elimination diet and had severe diarrhea when I added bullion and broth. I can have broth without maltodextrin, which isn't too hard to find. Try avoiding maltodextrin and carrageenan. Both have similar water binding structures. I also read that maltodextrin MAY increase e coli in the small intestine and therefore could cause issues for people with Crohn's. I read every label and never assume. In one instance my digestive enzymes were causing my diarrhea. Maltodextrin was not listed in the ingredients. I found out thru serious detective work! I do okay if I avoid those 2 ingredients. Hope this helps you.
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Anarkali
New Member
Joined : Jan 2013
Posts : 8
Posted 4/1/2013 1:40 AM (GMT -7)
Thank you! That also explains why I react on some supplements as well, as they put Maltodextrin almost everything.
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JerseyJade
New Member
Joined : Mar 2013
Posts : 11
Posted 4/2/2013 7:11 PM (GMT -7)
How about "mashed cauliflower" made by steaming cauliflower and pureeing it in a food processor. Add butter, salt, pepper and nutmeg. I find it to be soothing for irritable tummies.
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NY-Sooner
Regular Member
Joined : Sep 2009
Posts : 476
Posted 4/3/2013 4:27 AM (GMT -7)
Read the book "Breaking the Vicious Cycle"  It has a lot of diet ideas for healing inflammation and helping crohns patients try to get thier stmytoms unde control.  I have been in remission for 6 years and healed two fistulas since being on this diet.  You have nothing to loose by reading the book, and all to gain if you find something that will work for you.
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