, my names Tracie an I was diagnosed with crohns disease in July 2012 im 44 yrs old.
I returned to my doc spring 2012 after being diagnosed with colitis at a different hospital and had been prescribed pentasta, well cut long story short!
Id been diagnosed as having colitis for over 3 years but with pentassa I was not getting any better, I was still loosing weight and still had tummy cramps and diarrhea alot too, so I went back to gp feeling like crap ,I had joint pain and my muscles hurt so much making it very difficult to bend and pick things up and my doc said that my consultant at hospital said id only got colitis mildly and it wudnt affect my joints and muscles like I was explaining and to my horror I was told I was depressed and that was causing the joint pains etc!,
I was furious and decided to see another doctor and start from fresh which I did and must say my doc has been great, I had to wait 2 months to see different gastroenterologist at diff hospital which was ok,
Anyway had colonoscopy and endoscopy and was told while colonoscopy was being done that I had crohns not colitis and quite severely not mild and that yes that's why my joints hurt too !
I was put straight on steriods prednisolone and the first week I felt like id been hit by a bus and my eyes hurt alot too BUT after the first week my syptoms all over feel greatly improved and must admit I hadn't felt so well for over 10yrs, then after a few weeks the steriods were reduced and I had to start taking azathioprine first 50mg aday and now for last 3 months 100mg aday and stomach ok ish.
Anyway my other syptoms joint and muscle pain not gone and I've had other syptoms on an off for many years too which are
Pins and needles in right arm hand and left hand
Balance issues. Mild but off balance
Clumsy and co ordination out of sorts
Keep getting hives had it on an off for years
Eye pain plus some blurry vision
Tightness in top of body and arm
Severe muscle weakness in arms mainly
Stiff joints unable to bend freely
Plus few other syptoms tingling in legs, jelly legs somedays abd stiff Thursdays
So I went back to gp and had to see a neurologist recently and he asked me afew questions and done some reflex tests and eye tests.
He then said he thought id got at least 1 possibly 2 other things going on aswell as crohns :-( he said id have to have some MRIs done of my brain and spinal cord and that my azathioprine I take for crohns may help 1 of the other things id git,
I left his room thinking he must mean rheumatoid arthritis but after I spoke to someone on another forum they said it sounded more likely that id got lupus aswell and that azathioprine was also used to treat that!
I've read it's quite common to get another auto immune disease if you already have one.
Anyone else with crohns been diagnosed with something else? All comments welcome
Post Edited (tracie196868) : 1/18/2013 8:46:32 AM (GMT-7)