Posted 4/27/2013 5:55 PM (GMT -6)
i had 14 iron infusions of Ferrlicet last year but ended up having an allergic reaction at the last one. i recently switched to Venofer. i am having 5 infusions in 2 weeks. the hematologist said this is the typical protocol for it if you get 200 ml per dose for a total of 1 gram of iron.
gumby, you must be getting 500 ml per dose and that's why the infusion takes so long. my first infusion of venofer was just the 200 ml but i also had a test dose- i was there from 9:30 am-1:15 pm.
i also noticed my ankles were retaining water. i figured it was from the IV fluids but maybe it's the Venofer now that you mention it.
as for if the iron helps, it doesn't really affect my iron levels but it helps my hemoglobin dramatically. that's all i really care about at this point since i am basically relying on blood transfusions to stay alive.
Current: 2-4 bms/day- very anemic/low hemoglobin
Supps: vit C/D, CLO, astaxanthin, b12 shots, colostrum, dig. enz, l-glut, serrapeptase, culturelle, prescript assist, sacro b., scdophilus, molasses, liver
Tried: canasa, rowasa, entocort, pred, 6mp, remicade, humira, lialda, welchol, bentyl, LDN, cipro, flagyl, VSL, Vit E, 8 FT, clay, aloe, slip. elm, vanco for c diff