Missed a dose of remicade

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darbpls
New Member


Date Joined Jun 2013
Total Posts : 2
   Posted 6/10/2013 7:54 PM (GMT -7)   
I've been on remicade for about 7 months or so. I had gotten to the point of taking remicade every two months, but I missed my last dose and now it has been four months. I called in and the nurse scheduled me an appointment for another remicade infusion without saying much, and I've been reading up and there seems to be a lot of issues with missing remicade infusions and possibilty of severe reactions due to antibodies. Could antibodies have built up in the last four months? I'm just really terrified that I'll have a severe reaction, or just that the remicade won't work anymore. I know that my doctor always gives me premeds, so will that really prevent a reaction?
 
Any answers would help, I'm really freaking out about this.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 6/10/2013 11:02 PM (GMT -7)   
Hi and Welcome to HealingWell, No you can't build up antibody's
for missing one infusion of Remicade. It would take some time if you were off Remicade to build up antibody's to the med.
I was diagnosed with Crohns Disease 1992 . I also was diagnosed with Rheumatoid Arthritis.

Meds: Enbrel: Once a week injection, Vitamin B-12 injection monthly, Vitamin D :Once a week.



FORUM MODERATOR: RHEUMATOID ARTHRITIS

novice
Regular Member


Date Joined Aug 2011
Total Posts : 299
   Posted 6/10/2013 11:39 PM (GMT -7)   
Just for a further insight. I took remicade/infliximab for 9 months, religiously every 8 weeks. Was a dream.

I came off of it because my consultant "suspected" antibodies after I had a huge flare.

I think it was approximately 1.5-2 years after stopping the infusion, I asked my new consultant if there was any way to be certain I had built anti bodies, so he sent me for a very expensive blood test. Which shows no antibodies :)

I haven't yet restarted remicade I'm holding it in reserve, but even still I do not fear having a reaction. If I can go years without it, I'm sure your infusion will go smoothly!

I hope this held some kind of reassurance!
22 years old - Female
Crohns dx 2009
Azathioprine 200mg, entocort 9mg, pain meds

darbpls
New Member


Date Joined Jun 2013
Total Posts : 2
   Posted 6/11/2013 7:40 PM (GMT -7)   
Thank you novice that's very reassuring, were you on any other medications during your break? Apparenty Imuran can help to stop antibodies from building, and I haven't been on that so that has me a bit worried.

Tornado6
Veteran Member


Date Joined Mar 2013
Total Posts : 1155
   Posted 6/12/2013 3:16 AM (GMT -7)   
I had a three month break from January to April this year. Everything was ok, and I'm back to six week intervals.
Ulcerative colitis / 35 / female

budesonide - 9 mg
hydrocortisone enema
Imuran – 100 mg
Remicade - 7.5 mg / kg

Vit B Complex, Vit C, Vit D, Zinc, Colostrum, Digestive enzymes, Fish Oil, HCl, Iberogast, Kelp, N-acetylcysteine, Natural Factors Acidophilus & Bifidus, Tumeric, Limited FODMAPs

novice
Regular Member


Date Joined Aug 2011
Total Posts : 299
   Posted 6/12/2013 6:14 PM (GMT -7)   
The whole time I was on remicade I was also taking azathioprine and asacol
When I flared they did the usual antibiotics and pred, as well as the aza and asacol while we waited for humira.
22 years old - Female
Crohns dx 2009
Azathioprine 200mg, entocort 9mg, pain meds
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