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Remicade during pregnancy

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Crohn's Disease
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Beth75
Veteran Member
Joined : Jul 2007
Posts : 2158
Posted 9/5/2013 10:32 AM (GMT -7)
Hello,

I usually post in the UC board but thought I would be able to get some additional responses over here.  I have planned to continue remicade during pregnancy, I know there is a cut off time. I have been on it and in remission for almost two years. 

I'm currently 7w pregnant with twins : )  excited and nervous. I just wanted to hear experiences that people have had with remicade and their pregnancies. Most twins deliver early so I'll probably have to stop the remicade a bit earlier than what they typically do. 

TIA!

Beth 

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Beth75
Veteran Member
Joined : Jul 2007
Posts : 2158
Posted 9/5/2013 10:33 AM (GMT -7)
my last remicade was 7/24, so I haven't had it yet and my next one is 9/20.
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kazbern
Veteran Member
Joined : May 2010
Posts : 8384
Posted 9/5/2013 3:24 PM (GMT -7)
I think you go right up to delivery...you will need to talk to your OB and your GI about the timing of your last infusion before the twins are born.
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scifigal2k
Veteran Member
Joined : May 2012
Posts : 3669
Posted 9/5/2013 7:27 PM (GMT -7)
You actually shouldn't have an infusion after 32 weeks typically so that as much of the Remicade is as out of your system as possible (and therefore out of the baby's system). I just had a baby 7 weeks ago and did Remicade the whole pregnancy. She is doing wonderfully, although she was small. I had my last infusion at 29 weeks (just the way the dates fell - I actually stretched slightly with every 8 1/2 weeks) and then had a c-section at 37 weeks so I could get the infusion on time (the day after the c-section while I was still in the hospital). I had to do a c-section because I have an unhealed RV fistula with a seton in it.

That having been said, it depends on where your dates are for your infusions and how your disease is. I start getting symptoms a couple of days before infusions, so I really couldn't stretch it out much once I got to that 37 weeks. Especially with twins, who won't come on time most likely, you will just need to coordinate with your GI very carefully. If they do come early, though, it's not the end of the world. My GI said that she's had patients get infusions even two weeks before delivery. It just mean the baby has a weaker immune system at birth.

As for my baby, we just won't give her any live immunizations until she is 6 months old and we've been very careful not to go out in public for the first 2-3 months as precautions. In all other ways she's been extremely happy and healthy!

Congratulations!!!

Oh, and if you're planning to breastfeed, Remicade is totally safe. The molecules are too large to pass through to breastmilk (according to infantrisk.org)
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Beth75
Veteran Member
Joined : Jul 2007
Posts : 2158
Posted 9/6/2013 7:04 AM (GMT -7)
thanks for the info scifigal. Knock on wood, I haven't had any symptoms before my next remicade in a year and a half. I'll definitely work with my GI on dates. Congrats on your little one, glad she is doing well!
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