I guess basically all it is is a great big waiting game. SSDI is in no hurry, is what Ive heard and from what Ive read. Patience is a virtual. Hopefully my lawyers will work on my case. Thats all I can ask for. I did try to do it a few years back by myself. SSDI turned me down, said I didnt have enough doctors appts. Well, when you dont have health insurance for years and years,,,you just try to deal with Crohns yourself. I was put thru so much years ago that I do know my body. Lots of days it was just stay in bed and make sure I drank lots of liquids so I didnt get dehydrated. I just let it work its course. If SSDI could have seen my "folder" from the doctors office years ago, it would have taken them years to read it. It was at least 8 inches high. And yes, I did say folder. Back then, 1983, I didnt see anything on a computer. The biggest mistake I made was when I moved, I had asked for my records but they said it would cost me so much per page. Like I said, it would have cost me a fortune because of how many papers were in that folder. Plus I didnt want to travel with it all so I thought at the time my records would be safer right where they were plus if and when I was seen by a doctor, have them request my records. So anyways, I messed up regarding my records. Hospitals even have no records, after so many years they get rid of them too. Now if I had owned them a bill, I'm sure they would know my name,,,ha! So Ive been "living" with Crohns for 30 yrs now. Out of all my siblings, I got it. I was the best eater out of all of us. This Crohns hit me, all of sudden too. My doctor at the time said I was a rare case because usually you get colitis, IBS, or something first. I went to the top of the ladder, is how he worded it. My new gastro doctor is amazed at my story(s). I was pregnant and didnt even know it until I was about
8 months pregnant. Just thought my Crohns had goofed me up. So I call that son my miracle baby. He survived with me being so sick when I was pregnant with him. At the time, I was 99 lbs, gained about
10 lbs during the whole pregnancy, which actually made me feel a little better. He was small, 5#-14 oz and is a healthly 28 yr old. Thanks for the inputs on this forum, I did do a search up top like you had suggested Question Everything. And thank you Porkysgal for your input. When I first got this, I never even had heard of Crohns and didnt realize how many people in this world has this. So to everyone that does,,,,good luck and I hope you have good doctors who help you thru each and every day.