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Crohn's Disease
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Posted 10/15/2013 4:56 PM (GMT -6)

Hi all i am new to the group, and wanted to say hello. turn

diagnosed with endometriosis 15 years ago,had 7 operations and always had bowel problems.

now in may diagnosed with crohns after 4 months loose bm looks like had this all the time as well.

been put on medications for this,had 4 differen,t types pentasa,ascol.octasa and now on olsalazine just don,t now if working as been in hospital twice this month, with inflamation beginning to make me wonder if medication working? all they keep doing is putting me back on higher doses off prednisolone.Had mri last week because having severe pain right side,and now today accross pelvic area getting to the stage that oramorph not working but don,t want to go to hospital again and don,t now if its the endo or crohns? does anyone else have this? as getting stage can,t eat as pain get worse  after i do any comments welcome xx smhair

Posted 10/15/2013 6:34 PM (GMT -6)
Hi and welcome to the forum,

I have a history of endometriosis too and it can be hard to tell the difference pain-wise. Plus, surgeries can and do leave adhesions and nerve pain for some patients. But it sounds like your Crohn's is flaring.

I think about all the drugs you listed aside from prednisolone are all 5-ASA drugs, which may all have a different target area of the intestines. It doesn't sound like it's doing much for you. If you have an infection you're going to need antibiotics. If you don't think you can go back to the hospital, you should at least call your treating physician and find out your options. He may be able to prescribe something else without having to be hospitalized. Take care.
Posted 10/15/2013 7:55 PM (GMT -6)
Hi embabe, sorry you are feeling so poorly, but glad you found the forum.

The prednisone should be able to resolve this episode of inflammation. What is the dose you're taking now? If the oral med isn't getting the inflammation under control you might need IV steroids. After you get your inflammation under control you will have to find a maintenance medication - it sounds like the 5-ASAs you've been taking aren't going to do that for you, but it is impossible to say.

For the time being, you should stick to a low residue or liquid diet. Make sure you are getting lots of fluids and you should absolutely be calling your doctor.
Posted 10/15/2013 11:27 PM (GMT -6)
Hi and Welcome to HealingWell, You have found a good place
to ask questions about Crohn's. The people on here are very caring
and helpful.
Posted 10/16/2013 9:01 AM (GMT -6)
Thankyou so much for your comments its nice to now you are all their to help and listen thankyou so much am on 20 pred they keep putting it back up to 30 when pain gets severe x
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