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Emergency Preparedness

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Crohn's Disease
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scifigal2k
Veteran Member
Joined : May 2012
Posts : 3669
Posted 11/18/2013 6:33 AM (GMT -7)
With all the devastation lately and natural disasters, I started wondering what we would do in an event that closed pharmacies and/or hospitals, etc. How would we get our maintenance meds? I've always been taught to have food storage for a few months and other things in case of emergency. But what about for CD meds?
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Question Everything
Regular Member
Joined : Aug 2012
Posts : 444
Posted 11/18/2013 7:03 AM (GMT -7)
Some insurance plans let you go the mail order route and let you get up to a 90 day supply for pills, but I think they would balk at the injectables with their cost so high. In the event of an actual Emergency, if Hospitals have it you will pay through the nose for it, Phamacies and drug stores Point of sales depend on the internet for credit cards, insurance verification.

Basically, you would be without if it hits the fan.
If the infrastructure goes down, it won't be pretty.
When I was getting the Remicade infusions they only had a few days worth of stock on hand. I saw them "loan" out vials of Remicade to another group in the building because their delivery was delayed and they ran out. So they had very small on hand stocks. The hospital just down the street was probably just as bad. (Regional Trauma)

The saying " We're from the government and we're here to help." does not seem to help.

T
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teddybearweiser
Veteran Member
Joined : Oct 2004
Posts : 3042
Posted 11/18/2013 8:42 AM (GMT -7)
I use the mail order pharmacy for my meds it gives me 90 days
supply.
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11084
Posted 11/18/2013 9:00 AM (GMT -7)
This is my kind of subject! :p

I think about this quite often. Sometimes I include zombies, just because.

In my case, I have an ileostomy. I can eke out my current supplies for maybe 3 months if I got the longest possible wear-time out of each bag. Once the bags run out, I am stuffed. Ileostomy output is corrosive and will destroy the skin. You'd be much better off having a colostomy than an ileostomy in a situation like this. However, in the past people used to wear rubber bags which I think were reusable. I want to ask my stoma nurse about ordering a rubber bag, even if she thinks I'm crazy.

If the crisis had happened in the 18 months before surgery, my survival would have depended on being to stockpile Prednisolone. Any other meds would've been a waste of time. Without steroids, I'd have probably flared up and died. But come to think of it, at no point during my 13 years with Crohn's were maintenance meds anything other than a waste of time for me.

So you lot can have the Remicade and the Humira, the azathioprine and the 6MP, and the 5-ASAs: I won't be fighting with you for any of it. I'll be fighting old ladies tooth and nail for the ostomy supplies instead.
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SupportiveMom
Regular Member
Joined : Sep 2012
Posts : 259
Posted 11/18/2013 9:58 AM (GMT -7)
I am just trying to figure out how to order medicine ahead of time for a trip and still get approved by insurance, a zombie apocalypse, forget it, just eat my brains first. Natural disasters, we are screwed.
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Stef17
Veteran Member
Joined : Feb 2003
Posts : 1811
Posted 11/18/2013 10:23 AM (GMT -7)
A lot of insurances will let you refill a week ahead of time, so sometimes I do that and then pilfer away a week's worth at a time. It's slow going, but you can easily have a few weeks' worth in 3 months. Sometimes your doc can & will write you a script for 10 mg pills when you only need 5mg, that way you can cut them in half and the prescription lasts longer. You can set aside pills that way. If you're on a biologic, that one is tougher. You'd have to go the 90 day supply route and hope you have enough to get through if something happens.
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