Thanks for all your responses! I am so nervous about the surgery at the end of the month. My main fears are that I will end up with worse off symptoms than I have now. I really don't want to be chained to the toilet on a permanent basis afterwards. I can deal with recovery for a few months (or however long it takes for things to go back to normal) I just hope they DO go back to normal.
Looks like I will have a back to back colonoscopy and surgery.. Colonoscopy on the Tuesday, surgery on the Wednesday.. I won't be eating for a few days then so I only have to do the bowel prep once. Not looking forward to that either!
Thanks for your support :)
My doctor and I knew it was time for me to have surgery when the complications of my disease were worse than risks associated with surgery.
I had this surgery done a little over 2.5 years ago. As far as bm's go, I had D for about a month which then switched over to C. I've had to take a dose of Miralax nightly ever since then to keep things moving along. Some folks continue to have D. Others return to more normal/regular bm's. If you are either on the too much D or too much C side, the good news is that your doctor can prescribe or direct you to safe OTC options that will help alleviate the D or C symptoms.
I had surgery on a Monday morning and was sent home Friday afternoon of that same week. I had not had a BM at time of discharge from the hospital, as I understand some docs won't send you home until you've had a BM. But I was passing plenty of gas & did have a BM on Saturday. Tuesday (day after surgery) was my worst day pain-wise.
Definitely walk as they tell you to. I'd actually try to do an extra trip or walk for longer than they suggested, so long as I felt like it. Thankfully, my hospital also had a free wi-fi connection, so I was able to watch movies & tv shows from my smart phone. That helped pass the time after those first couple of days.
I was on a soft residue diet for 30 days, then was directed to slowly start adding in other foods after that. I definitely did as others mentioned and had to eat smaller meals.
The hospital nutrionist also gave me a target amount of protein to eat each day. (100g/day for my height/weight, which at the time was 155 trying to get back to 170.) I feel like this was an important element to my recovery. I'm glad I had that target as it was somewhat difficult to get there some days, and I know I would not have eaten enough protein on a low residue diet if I hadn't been trying to. Eggs, cottage cheese, fish, peanut butter and I think later chicken was a lot of my early diet. I was also still drinking Ensure as a calorie/nutrition/iron supplement, though I weaned off those over the course of my first month back at home.
I was back at work (desk job) 3.5 weeks after surgery with a few notes:
- I started back to work mid-week (Wednesday) so that my first week back would be a 3-day week
- I was able to work remotely from my home PC this first week
- the following week was the 4th of July, which made it a 4-day week
- the first two of the 4 days was also worked remotely from home
- my first 2-3 weeks back in the office I took the elevator to the 4th floor of my building, as I usually take the stairs.
- Both at home and back in the office, I made it a point to get up every 60-90 minutes and take a 5-10 minute walk.