It's been a while since I've connected with you all as I have been going really well . Am on Remicade every 8 weeks (cannot get it sooner in oz), as well as Imuran. Have started to get debilitating pain in joints over last two months. Had an infusion yesterday, but woke up this morning and can hardly move my hands, wrist and fingers. Sometimes in shoulders, elbows, knees etc, but always symmetrical. GI is referring me to a Rhuematologist - sometime - but concerned that after infusion, still have these aches. Anyone out there with this experience?? How was it managed and was it successful? So over it. Can't even open a bottle of water.
DX - Crohn's 1995, 3 x fistulas, no bowel ressection, 14 x abscess drainage.