My doctor wants me on Remicade soon, how was Remicade for you Nicecupoftea?
Well, the good news is that I didn't get any side-effects from it.
The bad news is I was in hospital a month after starting it >.> The surgeons wanted to operate on me during that stay, but my GI argued for giving Remicade more time to work. I gave it a year and it did **** all.
However, my GI told me that he'd only known 3 other patients for whom Remicade hadn't worked. I think I was given Remicade too late for it to make any difference: 5 years earlier and it might have have worked; 10 years earlier and I'm convinced it would have worked. But by the time I got onto Remicade it was like trying to put out a fire with a water pistol.
From that point of view, I am tempted to tell you to go on the Remicade, especially as your last colonoscopy showed active disease. The steroids have put you into symptomatic remission, but not healed your mucosa, which is absolutely typical of steroids. Hopefully the Remicade will heal your colon and lead to a deeper remission. I said elsewhere that biologics have not reduced the rates of surgery and unfortunately that does seem to be true. However, that may partly be due to biologics just being prescribed too late: it's still standard practice to start with the crap stuff (5-ASAs are better for UC than for Crohn's) first and then painfully slowly work your way up through the gamut of meds.
I can see why it's done: for people with mild disease that is not going to get any worse, Remicade is overkill. Trouble is, people with mild disease that is
going to get worse invariably go undertreated. Unfortunately, there really is quite the massive leap from 5-ASAs to the next class of meds: the immunesuppressants and biologics.
*sees time* Oops, I should be in bed by now. But yeah. Talk it over with your doctor again if you are still worried, but my inclination is to agree with him about
going on Remicade.