I have benn dx'd for almost 24 years now....I was really lucky for 22 years with minor kick ups and weird skin issues. Now I am getting all sorts of new things going on. Seriously??? I feel like I am starting all over again learning my (old) body.
So I am sitting here at work and my gut at my TI (where my rupture resection was in 1990) is pulsing with a glug glug feel...you know like when the spot below your eye twitches...only this thuds. What the heck??? I really miss my old normal.
Age 45-50, female. Still holding on with just Pentasa and cholestyramine! Doc says most of my problems are side effects of my resection ('90) and my disease is doing GREAT and no sign of a repeat fistula. Meds now to control the lack of TI and gallbladder....happy to be out and about
. OOOpppps...first big flare up in 11 years (10/2012) - but still trying to get back to "my normal".