So here's a bit of an update:
-my legs and hip are still killing me. I have an MRI of my hip on Thursday, and the rheumy is supposed to call me back about
-the endocrinologist said that my prolactin levels are too high, so we are doing an MRI of my pituitary gland in two weeks. We'll also do a cortisol reaction test.
-the neurologist thinks that the numb/tingling episodes I've had the last few years are a weird kind of aura for migraines, but he wants to do a brain MRI just to check on things (I'll do it at the same time as the pituitary one)
-the mole on my inner labia that got removed (again) has come back as moderately abnormal (the first time was just mildly abnormal) so they said I have to come back in a third time to remove even more around it to make sure it's really all gone. Ouch. I'm making them do it under anesthesia this time since last time the lidocain couldn't go deep enough no matter how much they kept giving me and I felt them cutting and then cauterizing.
I'm still not sure how the ones on my back, which has been sunburned and blistered a million times, are all benign, but my INNER LABIA is the one with the cancer scare?!
-I've decided to have the fistula plug surgery and am trying to get that scheduled.
-my CD seems to still be in remission, thank goodness.
My next remi infusion is in two weeks. Last time I started getting really sharp, stabbing pains in my abdomen for about
10 minutes. I'll see if that happens again this time.
-I finally get to see a pain management doctor this Friday. I hope, hope, hope we can get something going.
-I finished the disability application. Now for the waiting.....
ummmm, what else...?
-we're running a ton of blood tests to find out why I am so dang exhausted all of the time. Even with two naps a day, I still am just so tired. But all of the hospital bloodwork on Sat night for the leg pain came back "normal" (I have GOT to start asking them for printouts of results. Sheesh.)
-I also have an appt with a chiropractor. Maybe that's why my legs and hip hurt?
I think that's it. Thanks all. Sorry for the rambling.
CD, c. diff., gastroparesis, fistula
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong." 2 Cor 12:8-10