My udate on my medicine free method for chrons.

I deleted this so this thread stops but i do and i wrote down all ideas and recommendations thank you :)

Post Edited (please deactivate account) : 8/23/2014 6:46:50 AM (GMT-6)

Read the book "breaking the vicious cycle" which goes into detail of how simple changes in diet and the food you eat can put you in remission forever from this dreaded disease.  The book talks about the SCD diet and how it cured this woman's duaghter of ulcerated colitis.  I have been on this diet for 7 1/2 years and I cured two massive rectal fistulas and have been in complete remission with not one symptom of my CD. The only drug I take is pentassa.

The food you eat has everything to do with CD and in some people, especially newlly diagnosed people without much damage to their intestines, a simple change of diet to the SCD can put them in permenant remission.  I suggest you read that book.

 

This morning I woke up to a post on facebook, of a beautiful 28 year old girl who died this morning from Crohn's disease. I'm sorry, but I won't sugar coat this disease for anyone. It's a serious illness. Our bodies are already NOT doing what they are supposed to be doing. It's not a food allergy, it's not something we can will away.

Good luck to those of you who think you can with diets. My heart is broken for those who have lost their battle to this disease. It's scary, and it scares me to think people take it so lightly like it's something we can just adjust our diets for. Like I said, good luck to you.

I for one am grateful for ambling's and Jen's posts. Both said exactly what I feel. I'm sick and tired of seeing certain people promote their personal agenda in literally every post that they make. Yes, if I hardly ate anything, I managed to feel better too: it didn't mean my disease was being controlled. Not only was it not being controlled, it continued to get worse with each passing year.

Truth is, medication is stronger than diet. Remicade is more powerful than the SCD. I'm not saying to never give diet a whirl, especially while your disease is still mild. Just don't act like it's somehow more 'virtuous' or 'pure' than taking medication. Not in front of me at any rate.

I am sorry I guess I did not realize this site changed, I am very hurt i wasn't here to anger i was here to share but now i am the bad guy, ive seen posts here I didnt like but never posted or even acknowledged them i even apologized though i don't feel i was wrong like i said if you don't like what some one says ignore it but i guess i forgot about the ones who love drama. the ones who have comment on every thing. though it breaks my heart I will disable my account, I felt like this was a place to share a place I belonged I was wrong. please disable my account. :( I did appreciate the positive responses and the ideas thankyou the email listed is disable

Post Edited (dusty1999) : 8/21/2014 5:19:52 AM (GMT-6)

Let's all calm down a bit. The original poster just stated what worked for him. If someone is in a similar situation, they may want to discuss these options with their doctor.

Please, everyone step back and take a breath, otherwise the thread will be locked, etc.

Thanks.

I just can't see the point in posting if you can't accept differences in opinion. I just don't agree with people who make out controlling Crohn's is all about controlling diet and stress. There's virtually no evidence that Crohn's is caused by either; the real causes of Crohn's are likely to be so much more complex.

If my saying that offends people, then I don't really know what else to say.

Edit: @djiane - I tried eating a healthy diet. I drastically cut my sugar intake, upped my intake of veggies, etc. At one point I followed a gluten-free diet and I also tried a couple of liquid diets. Nothing made any difference. Nothing slowed the progress of my diet. Diet may work for some people, but it did zero for me.

As far as remission is concerned, there are people on this board who have been in remission for 20 years without following a "healthy" diet or being on strong meds. Crohn's is a remitting-relapsing disease. Most people who get Crohn's would have periods of remission regardless of if they did nothing to treat it. Being in remission is nothing special: I have a brother with Crohn's who is in remission most of the time and he does not follow any special diet. He is on azathioprine though.

Anyway, I'm not - and never have done - tried to discourage anyone from trying any diet that they want to try: SCD, GAPs, fruitarian, breatharian - whatever floats your boat. I just don't need to be preached to about it every other week.

#blogwell

Post Edited (NiceCupOfTea) : 8/22/2014 9:40:15 AM (GMT-6)

@please deactivate account
Hello, I have posted here a few times about my benefits with nutritional therapies for Crohn's & I got the same negative response from the same people.
I'm not sure why it is so difficult for some to understand that what we put into our bodies can help us or hurt us. If I drink too much alcohol etc. it can cause me bodily harm.
Most of today's processed & packaged foods contain many man made preservatives & chemicals that do not occur in nature. Many of them are known to cause cancer in lab animals.

I will not tell a Crohns sufferer that eating healthy is easy, because it is very difficult to always eat healthy in America. But it has only HELPED me not hurt me as a crohns sufferer.

I suffer less because of nutritional medicine.

Whatever we eat has to pass directly through our intestines & that is where crohns exists, so why not try to make an effort to put healthy nutrient rich foods into our sick intestines.
Maybe it could help us to feel better. It may not take crohns away or cure it, but very likely it should not hurt us to eat healthy.
In my case it has helped me since 1991 when I was diagnosed.

I also take:
-Aloe vera juice when I am sick along with
supplements like:
-Fish Oil (Enteric coated);
-multi-vitamin (not one a day) a good vitamin with lots of B-vits for energy.
-Quercetin
-Boswellia
-N-Acetyl Glucosamine

Please feel free to research any information you can find on these nutrients and what positive effects it may have on Crohns. There may not be any peer reviewed studies on these nutrients, since they are natural and Pharmaceutical companies can not patent them and make money from them.
It has been over 20 yrs since I have taken any prescription meds. They were just making me sicker.

I grew up with Crohns as a child and if it wasn't for those doctors diagnosing me correctly, I would not be able to address this sickness & make the necessary changes in my life that has helped me.
I do respect the medical advances today but a person has to use the system to their advantage and not allow it to cause more harm to them from side effects of medications.
There is no one magic pill for Crohns. Hopefully I have not offended anyone here.

I am staying my husband set me straight, I was being a drama queen. he is my voice of reason. i showed himthe posts because i was upset. I appreciate all the posts on this thread. I will continue to use this site as a learning tool as its helped me a lot. I promote it on my facebook page , and I look forward to reading the newsletter. I have to learn to be able to realize not every one is like me, and not comment or let it upset me. please forgive me and I am sorry to create the drama that started here

73monte: Crohn's and Colitis Awareness, on Facebook, has her story. Her name is Teresa, not sure if I should put more then that.

I don't like drama, and I don't care if people choose to try diets. I can see how they may help with some symptoms, and maybe help if your disease is mild. What I DO care about is people taking this disease more seriously. How can we get the world to see how awful this disease is if those who have it believe they can "cure" it with simple diet changes and over the counter supplements. People are dying from this disease. It effects so much more of our bodies then just a belly ache and some diarrhea. Take it serious, that's all I'm saying.

73monte, I tried to dig around and find some more specifics. Her family only mentions her fight with the disease is over and Crohn's complications taking her. It is very very sad.

Just a week before facebook also lost a man name Gary that had Crohn's. He seemed bad off for a long time, doctors speaking of hospice and such. It can be a very scary disease when it wants to be.