Posted 10/17/2014 3:43 AM (GMT -7)
Hi all. I'm new to the forum, and just looking for a little conversation from people who've been there, I guess. I'm 29 (30 next month) and I was diagnosed with Crohn's at 21.
I'm currently about 7 weeks pregnant.
A little history: I miscarried at about 9 weeks earlier this year (March). My Crohn's was very active during the pregnancy and following the miscarriage, and I ended up having 4 surgeries between March and June for a persistent fistula. We were of course very sad at the loss, but also recognized that my body just wasn't capable of creating a healthy new life right then. I was not on any medication prior to or following that pregnancy, aside from a 10-day cycle of prednisone (10mg) following the last surgery. This summer I improved greatly, even without medication. My fistulotomy healed very well, the fistula did not return, and I even gained some weight and began working out - which, I have to say made me feel better than I had in probably 10 years.
In early September, I learned I was pregnant again. (If you do the math, I learned of the pregnancy like 5 minutes into it! :)) Around the middle of September, I started to flare. D set in with a vengeance, severe cramping along with it. I was going between 8 and 12 times during the day and another 4 to 5 overnight, and losing about a pound every 24-48 hours. I was holding my breath, hoping it'd pass, but of course it didn't. Finally, my GI put me on Lialda (four 1.2G pills daily), plus a 1-month cycle of Entocort (6mg daily for 14 days, 3mg daily for 14 days).
I am about 2 weeks into the medications right now, and they seem to be helping, though not "fixing." The D has definitely slowed, though still present and painful after eating. Still - it's 4 times daily instead of a dozen, so I'll take it. The thing is, this past week, more symptoms have shown up. I have painful, welt-like red bumps (I think it's called erythema nodosum, although that's just my Google diagnosis) on my lower legs, and joint pain that makes me feel as if I'm 90.
I'm sorry this is so long, I just wanted to get it all out there. Here is where I am today: I'm not feeling very "pregnant," and wonder how a developing fetus can possibly survive this trauma (the pain, the malnutrition, the not-100%-safe-for-pregnancy meds). For obvious reasons, the looming fear of miscarriage is also pretty heavy on my mind. I'm just wondering if anyone else has gone (or maybe going) through this kind of CD severity during the first trimester? I welcome harsh realities as much as happy endings and appreciate you taking the time to read this long ass post.