Hello everybody! Long time no see!
I'm 38 weeks pregnant and my csection is scheduled for November 14th!
I've been taking Remicade for 4+ years now because of a fistula I developed in 2009. The remicade closed the fistula for 6 months, but then it reopened by January 2011. I take it now as a maintenance med. Late spring of 2013, my GI made me start 6mp as a way of boosting the strength of the remicade. It took 3 months to kick in and I felt like crap the whole time. By September, it helped a little with indigestion, but nothing changed with the fistula. By December, my hair was falling out and by January, I was taking folic acid to make my hair grow back, and then BOOM! Pregnant! Everybody insisted that I go off the 6mp, so I did.
Well fast forward to now, remicade and pregnancy hormones have kept the disease from wreaking too much havoc, but I've had more drainage from the fistula, more skin aggravation in the perineum, and lots of morning urgency to poop. I literally wake up and 5 minutes later I'm taking care of business.
I'm worried about the postpartum period. I know that my chances of flaring are high because of all the changes in hormones. I don't want to go back to 6mp and feeling like crap for the first 3 months of taking it. I want to breastfeed as much as I can, even if it's not exclusively.
My question is very specific, but I hope someone out there has been through it: If sick in the postpartum period, what drug will my GI likely proscribe me in conjunction with the remicade?
I want to do my research. I don't want to be blindsided and have to take something without knowing how nasty it is! But I don't know which drugs act like a booster like the 6mp. I don't see the point in switching to humira because my old GI told me that there were no studies showing it successfully closing fistulas.
I was on asacol as a kid, lialda before the remicade, and I've taken ciproflagyl, which only worked once, and has made me want to die while taking it ever since!
My fistula is 5 years old as of August. I really wish it was gone, but my quality of life is pretty decent and not worth the high risk of a surgery. Fingers crossed that the csection doesn't cause an abdominal fistula!
Thank you, everybody!
And good luck!