NCOT - yeah, i'm sure keeping crohns secretive to everyone will help us all out so much. so you wont give anything to any ibd awareness projects, what about other disease's? are you against people even knowing about health problems? i'm really not understanding your thought process on this.
If I won the lottery (and why wouldn't I with such great odds of 14 million to one? <_<), then I'd look for research teams doing actual research into Crohn's to donate to. That way I can avoid three quarters of the money being squandered on charity workers' salaries, PR exercises, etc.
To everyone else: Yeah, you make a very valid point about
some folks with Crohn's being just as bad, if not even worse, for perpetuating the myth that you can control Crohn's simply by watching what you eat. I must admit when I first got Crohn's, I didn't see what all the fuss was about
. As I wasn't fobbed off with IBS for a few years first, I got an early diagnosis while my symptoms were still mild. Even when I did eventually fall ill, I was in denial for a few more years: partly out of ignorance and partly out of stubbornness. I was the opposite of a hypochondriac: minimising every symptom I had.
I can't help thinking some people are in denial about
their own disease. I can't blame people who are new to Crohn's, like Sam. She'll either be lucky and be in the 10-20% minority who have a lifelong mild case or she'll find out the hard way that avoiding drinking white wine isn't enough to prevent things like strictures, fistulas, bowel obstructions, etc.
On a slightly less gloomy note... Happy 2015 folks :p