Hi NCIT, well the dang crohn's won't let me forget. I too have been through the meds and the herbs and the supplements and unfortunately, it is one stubborn disease. I'm at my wits end, as far as I'm concerned I ran out of options. According to my GI, Humira is the only thing left. I already had Remicade and the whole array of other drugs including prednisone which helped me more than once.. Regardless of the new report on biologics/I am still not convinced or comfortable with it, but I ran out of options. My GI was upset with me because I got sick on the azathioprine, I was on it for a month and had fevers and went down to 70 lbs. He blamed it on the crohn's, took me off but told me he won't treat me with prednisone anymore and said there is nothing else, so he let me walk out of his office without treatment, sick and at 70 lbs, not even a 3 day course of prednisone to help stop the attack I was going through. I thought that wasn't very nice of him. I am convinced that the medication caused me to drop the weight. The fevers stopped after I stopped the med. It's bad enough when one feels sick with crohn's and it's even worse when the doc gives you med and it makes you sicker, but they don't believe you.
Recently, a Colon Program found blood in my stool so sent me for a colonoscopy and the Colonoscopy doctor told me something about
crohns's in the junction and told me to make sure I contact my GI, I was thinking about
it, and figured I would wait until the biopsy report comes back before I make an appointment with my GI, then I figured, why bother, he won't treat me unless I take Humira? Then this past Friday, the Colon doctor sent me a notice in the mail that he wants to see me in Feb, think it's a follow up? Are follow ups normal after a colonoscopy? Now I feel I kind of worked myself into a corner and will probably have to make the appointment with my GI? So yes, I can certainly understand your frustration!
Post Edited (dorri) : 1/17/2015 10:11:33 PM (GMT-7)