Posted 4/6/2015 9:49 AM (GMT -6)
Minnie, I'm sorry that things haven't gotten better for you. I'm sure all of us in the forum who've read your posts have known you've been flaring/relapsed for a good while, so your GI was stating the obvious, at least it seems to me. I know for myself, I get into a "place" where I think if I just don't acknowledge the problem, it's not really there - that long river called "de Nile", but reality is still reality.
The stress you've been under with your career makes it hard on your body. I saw this with my daughter when she was in grad school. I lived with her on campus at one point because she was struggling so much. It was a huge campus and I would have to drive her because she couldn't physically walk from class to class. I noticed in her apartment complex, which was made up of all grad students, just how worn out these otherwise healthy twenty-something year old people were. In my daughter's case she was teaching and attending classes simultaneously, which was grueling for her. I took it upon myself to call and try to get her a medical leave because she would have died before giving up, and that's where she was headed, only getting an hour's sleep at night, due to exhaustion, medication side effects, and stress.
Have you considered taking a medical leave in order to deal with you medical issues? Someone asked you about biologics - is that a consideration for you as you seem to need more than what the older meds can help with. For myself, I have reasons I can't go that route but I live in the US and it's not financially feasible among other things. If your GI isn't discussing biologics with you, unless you've made it known you won't go that route, there is something wrong. The first GI I ever saw wouldn't consider biologics or eve 6MP; he said he didn't treat any of his IBD patients with these, which is pretty much saying he doesn't treat IBD. Has your GI discussed surgery?
Do you have family that can help you while dealing with your illness? I hope so, but it's not always the case. Let us know how things go.
55 yr. old--CD over 43 yr. Hemi-colectomy '01; spinal cord injury '01; fistulae since '97; enteropathic arthritis, chronic pain, muscle spasms, scoliosis, rotator cuff injuries
Sometimes I have a wicked sense of humor, other times I have no humor at all, but most of the time I just have no sense.