Oh thank you so very much for the responses!
To answer your questions: We live in Arizona and he had a colonoscopy, endoscopy, serveral blood test including a Prometheus test, a follow through and now finally, after we switched to a different GI, an MRE done. The previous GI just wanted to keep running tests to make money as I assume, he had him diagnosed with CD last year after the colonoscopy but neglected to tell us and did not prescribe any medications or treatments except for more tests. I can't tell you how disgusted I am with that office.
The new GI determined that most of the inflammation is in my husband's small intestines but did not say anything about
strictures or fistulae. Reading your comments leads me to agree with you and believe that he really is not familiar with the disease as he did not explain what really is all involved with CD, what effects it has and had no suggestions on change in diet or pain management.
Fignewton212, I appreciate your input and I see everything you're saying in my husband. I do not blame him or resent him by any means, nor am I complaining, all I want for him is to feel better and be able to live a pain free life. I truly feel for you and him of course and it hurts me to know that there's nothing I can do to help, I hate to see him this way and am, like him, furious to discover how little doctors actually know or seem to care about
helping people suffering from this disease.
As of June 1st I will be eligible to switch to a PPO plan which will help with the doctors office fees and my husband has reduced the dose of Sulfasalazine to 250mg twice a day to make it less harsh on his body. He's been on it for a week, we'll see how it works out. I don't know how a normal person with a full time job is supposed to take any kind of medication 4 times a day with a meal...
For now that's the plan we'll stick with since he is so tired of getting nowhere and does not want to go see yet another incapable doctor and his condescending nurses.
JaSanne, you mentioned an elemental diet, what does that involve?
Once again, I appreciate all your advice and input. Please keep it coming, I am very glad I decided to join and post on this forum!
Post Edited (Hexe) : 4/18/2015 12:38:17 AM (GMT-6)