Posted 4/22/2015 10:33 AM (GMT -6)
Sorry for another long post... I really need some input. I have posted a similar post before, but some things have changed so I'm revising it. I am having some serious rectal issues :( I have been in extremely healthy remission for the past 8 years with no meds. 1 or 2 formed BM per day, no pain, no sign of Crohn's.
I have also been living with a seton in my peri rectal fistula. It has been fine. I have lived a very active lifestyle with it and no pain.
But about a month ago now I started feeling pressure and pain and blood coming from fistula with BM. After 4 sitz baths a day didn't help, I went to the CR doctor, she took a look and said everything looked fine. She said no hemorrhoids etc. Then she prescribed Flagyl (which would go on to lead to C-diff!) I went back in a few days after starting the flagyl because the pain was like severe stabbing needles throughout the rectum but especially on the fistula side. She ordered a CT. Came back clear in abdomen but some thickening of rectosigmoid. She said there was no sign of infection or abscess. She said she wanted to do colonoscopy. But I was in too much pain down there to do the prep so she said wait til I finish the flagyl then we'll do it.
So, I finished the flagyl but then started getting D! Tested pos for C-Diff. So now they want to wait to do the colonoscopy until the c-diff clears up.
In the meantime the pain was starting to return and low grade fevers started. I started Vancomycin, Florastor, and another probiotic for the C-diff and now 4 days into it, the pain has just slightly subsided. It's still pretty bad though. I will try to describe it the best I can..
The fistula site looks different to me. There is a red pimple like thing in the hole next to the seton and there is some fresh blood around it. It's not dripping blood but it's there. That area feels like a deep cut. Then I feel like I have something (like a stick) stuck in the anus at times. And some pressure and needle like feeling all throughout both sides of the rectum.
I am in pain and I am so scared the pain will come back full force once I'm done with the antibiotics. I don't have a GI until next week (that's a whole other story I posted about).
And even so, why wouldn't they at least try to treat me for this with something besides antibiotics? I just have to suffer until the c-diff clears up and then they do scope? Then what? What if they still don't know what it is? Tried remicaide a long time ago but I had allergic reaction and have had reactions to many meds. I can't take any pain narcotics without getting violently ill.
Can you take prednisone during c-diff? I just don't know what to do. Anyone else have anything similar? Besides doctors appts I have been in bed or on the couch for a month. I am a single parent and thankfully I am living with my family and they are helping me. Then there's the guilt of that...
One more thing and this might come as an off the wall question.. A little over a month ago,,right before this started,, my parents were both really sick with the flu. I was taking care of them and I didn't want to get sick myself. I started taking a bunch of homemade elderberry syrup as well as vitamin c, goldenseal and echinacea, vinegar & water shots, and other supplements. Well I didn't get the flu,, but then all this started! Do you think I over boosted my immune system and threw it in to a tailspin and created this manifestation?? I know that even though I've been symptom free for the last 8 years, Crohn's can just pop back up, but it just seems like it may be connected to this. I feel so dumb. I was just trying to stay healthy.
What do you think?
I appreciate any replies, and advice. Thanks!