So I've finished my induction infusions of Remicade this past week. In a lot of ways I'm doing much better. I'm having formed bowel movements for the most part. Going once or twice a day. A lot less abdominal pain. Still having some joint/body pain, and well I don't think the fatigue will ever really go away. My B12 looks good, and I'm still taking 2000 IU of vitamin D a day. I'm sure that's still low yet.
My doctor sent me a letter about
my latest blood work this week. White blood cell count is high from the steroids. Yes, we know that! But he always says my platelets are high, and this is due to still having active inflammation. Is that usually a good indicator of that alone? Without checking the CRP or Sed rate? I'm starting to feel frustrated if I'm still having that much inflammation in my body. I'm down to 10 mg of steroids on my taper. I feel it's nothing but a game of yoyo with steroids. If I only feel this good with having steroids then I'm back to square one. If I'm still having active inflammation then as soon as I'm off of them it's back to going down hill and landing myself in the hospital.
He said if this doesn't work he's sending me out of state to a big teaching hospital. Because he doesn't know what else to do with me.
I'm on 10 mg of Methotrexate orally right now. Should I see about
bumping it up? Maybe I should ask for the shot form? I want to give Remicade and Methotrexate the proper shot at working here. But I'm starting to worry that it's as usual the steroids propping me up.
Diagnosed with Crohn's Disease in 2006, but suffering since 1997.
Prednisone (tapered to 15mg)
Failed: Humira, Imuran (caused pancreatitis), Cimzia
Post Edited (Jen77) : 4/24/2015 1:17:05 AM (GMT-6)