It's highly unlikely that those people "developed CD afterwards" it doesn't work that way, what can happen is one patient can have BOTH UC and CD but that's the rarity of 2% approximately, very different from what you wrote. Or more likely as in many cases, the patient actually had CD to begin with but was told they had UC, they get their colon/rectum removed and find out later when their CD ends up affecting their small intestine, meaning they had CD all along and were misDX.
It's not highly unlikely. There's about
a 5% chance of being diagnosed with Crohn's after having a j-pouch. ibdcrohns.about.com/od/pelvicpouch/fl/How-Likely-Is-Crohns-Disease-After-J-Pouch-Surgery.htm
So it does work that way sometimes.
Thanks for the reply , that's the strange thing with myself as I never had any gut problems until this happened , I had extreme diarrhoea for around two months and was awaiting a colonoscopy when I became very ill and was admitted to hospital where they discovered my colon had perforated was basically rotten and needing taken out. They said due to the state of my colon they could only say 'probable' crohns then with the sore joints and other issues they said crohns a bit later.
My father has suffered from UC since his early thirties and I was 38 when this all kicked off , I'm glad things have taken a turn for the better at last but this is at the back of my mind.
Looking at pb4's post and the CD going through layers I suppose that sounds like me as well as with the fistula.
From what I had read of CD it's something that's with you forever with periods of remission which was why the surgeon surprised me.
That sounds like your Crohn's colitis came on very fast and acutely. Your surgeon should definitely not have told you don't have Crohn's anymore :/ That said, having an ileostomy gives you a protective effect: the Crohn's is less likely to return with an ileostomy than if you were to be reconnected (can you even be reconnected or was your rectum taken out as well?)
However, I do think with your history of Crohn's colitis coming on suddenly, you need to be aware that the same thing could happen with your small bowel. It's probably not very likely, and hopefully it won't happen, but it's a possibility. If symptoms do start up again get them checked out quickly. A healthy, low-sugar diet and prophylactic medication may maintain your remission for longer. If you do decide to take prophylactic medication, don't waste your time with Pentasa: go on an immunesuppressant like 6MP or azathioprine instead.
Me, I have an ileostomy and have gone the unhealthy diet/no med route >_>. My Crohn's got worse over a period of years rather than months, though; therefore I'm banking on it also slowly getting worse in the small intestine, which will give me plenty of time to get on meds, etc. I've been in remission for two and a half years.