Also, the fact that 56 percent stayed in remission after one year doesn't tell me they were right. Show me five years after and then I'll believe it. Lots of posts here have said how a they had a 2 or 3 year reprieve then a horrible flare that made things much worse.
Okay, but to make that study meaningful, you'd have to have a control group who stayed on Remicade to compare the abstainers to.
I do agree that 1-2 year studies are just way too short to really assess the long-term efficacy of meds (or, in this case, being off meds). The cynical side of me thinks it's deliberate, so biologic manufacturers can claim higher remission rates, i.e. 60% still in remission after 12 months as opposed to 35% still in remission after 5 years, or whatever. Yes, that's all I was saying. I wish we had better options
So do I. I have never been able to jump on the hype train for the biologics, although I would certainly rather we had them than nothing at all.
I'm sorry about
your friend, gumby. I'm glad the chemo worked, but I just couldn't imagine going through all that. I can't cope with what I've got now :-/
Dx Crohn's in summer of 2000. (Yay )
Tried and failed: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, various diets.
Had surgery Feb '13 - subtotal colectomy with end ileostomy. First thing to put me into remission in 13 years.
Had second surgery 10th July '15 to reverse the stoma and connect the ileum to the rectum. Feeling rough.