Were you symptom-free for the 7 years in between your first bout of symptoms and your current ones? Pity you didn't decide to try a gluten-free diet, as coeliac disease is much more likely to cause ulcers of the small bowel than lactose is.
I don't have any great advice or words of wisdom I'm afraid. Crohn's - with the exception of Crohn's colitis, which is confined to the colon - usually appears in the terminal ileum. I presume it can skip the terminal ileum, though: I just don't know how often it does that.
Entocort does usually work for Crohn's, but you could be in that minority of people who don't respond to steroids or who respond very slowly. A stronger steroid like prednisone might work or it might not. But personally, having tried one steroid I wouldn't be in any rush to try another: steroids are best taken as infrequently as possible.
Even though I have had a Crohn's diagnosis for years, I do understand the slowness of undergoing multiple testing. In that particular boat right now. It seems like it's taken them months to find out I have disease in my rectum; now I'm trying to find out what's going on in my small bowel. In the meantime I'm having pain and my surgeon doesn't want me to go on steroids until I've had an MRI scan (which will probably be in February).
All you can really do is manage the symptoms in the meantime. This can be done with other meds (painkillers, Imodium) or dietary changes. But yeah, it is extremely, extremely, extremely boring.
Dx Crohn's in summer of 2000. (Yay )
Tried and failed: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, various diets.
Had surgery Feb '13 - subtotal colectomy with end ileostomy. First thing to put me into remission in 13 years.
Had second surgery 10th July '15 to reverse the stoma and connect the ileum to the rectum. Officially flaring again. The fun never begins.