I just saw my gastroenterologist a couple weeks ago, and she was adamant about
not letting me try anti-map bacteria antibiotics, all because she thinks there isn't enough good evidence that it works, depsite the numerous studies I tried to show her on thecrohnsinfection.org. For some reason she thinks these studies can't be replicated, which is ridiculous. But I didn't want to argue with her so I didn't say how ridiculous I think she was being.
My gi surgeon wants to try a reversal operation for my stoma in 6 months, and I'm worried my crohns disease won't be sufficiently controlled with just taking Humira and Immuran, and if its not then the surgery will probably fail and I will be stuck with a stoma for the rest of my life. I just want to give my body the best chance it can have to fight the crohns. I've even given up all dairy products in my diet, and if I can find gluten free bread, I'll be eating gluten free as well, so the chances of reinfection should be very small. I don't want some closed minded doctor getting in my way for that treatment. So now I'm looking for another doctor who will be willing to prescribe those anti-biotics. But the problem is there are very few GI doctors in my area, and I've already seen most of them. I can't see anyone outside the state of Kansas because my insurance is Kansas medicaid. I have to travel over 100 miles to the nearest ones that do exist in Kansas, Wichita and Kansas City. All these doctors seem to only be able to schedule an appointment 1 month in the future, and I have such limited time to try to find a doctor who will be willing to prescribe them.
I really want to be part of the trial for the map vaccine, but I have no idea who to contact in order to sign up. Or is there no way for Americans to sign up for this trial? If anyone can please tell me where and how I can sign up for these trials, I'd greatly appreciate it, thanks.
Post Edited (edenenix) : 1/13/2016 11:44:28 AM (GMT-7)