I'm a UC'er who had j-pouch surgeries in 2013 & 2014. I've been dealing with chronic pouchitis for the past 18 months and want to get off of antibiotics.
At my request my GI prescribed Cimzia (2) pens at 200 mg once a month. Last month was the first regular scheduled dose after my 3 loading doses. It worked great for about
7 days but lost its effectiveness after that; that was really the best response that I've had from Cimzia including the loading doses, Cimzia doesn't seem to be that effective for me.
I've had a minor side-effect of peripheral neuropath that I've had with previous anti-tnf meds, it goes away few days after the injections. I can live with it.
My question is, has anyone increased their monthly dosage or frequency from the standard regular dosage and did that help? I've asked my GI to get me Stelara but my insurance company is being a PITA so it might take a while, so I'm looking for alternatives I'm due for my next Cimzia dose next week.
The only anti-tnf that really worked for me was Remicade and that was great for about
DX'd with Severe Pancolitis June 2005
Previous Meds: 5ASAs, Predisone, 6-MP. Remicade, Humira, Simponi, Cyclosporine -- Twice
3-step J-Pouch surgery: 2013 & 2014
Current Condition: Chronic Pouchitis -- Not as bad as I thought it would be
Current Meds: Cimzia, Sulfasalazine, and rotating antibiotics
Future meds: Stelara, currently waiting for my insurance to approve it
Post Edited (ks1905) : 1/16/2016 10:58:52 AM (GMT-7)