Thank you both for your responses, it helps so much just being able to talk about
it because I'm just kind of trying to wait and see how this is going to progress at this point and it gets rather frustrating at times. Some days are okay and some days are definitely not easy. I had like three fantastic days after the first stricture dilatation and I just wish I could feel like that again at least more of the time.
@clo I have a constant steady headache when I have the body aches But the auras all came on when I was moving my eyes a lot, one while driving and true other while reading. The severe headaches lasted for days to weeks after the onset and the last aura came on after sedation. After the aura was gone I still experienced a sensation like "it" was welling up and was going to trigger another episode frequently when I would move my eyes too much for several days.
What you say about
heat I can completely relate to, what I don't get is why I'm getting it now while not in a flare.
@NCOT the antihistamine is an interesting thought, though I don't know if the headaches were close enough to the time of infusion to be related unless I just need to be on them constantly.(ugh this posted before I finished so I'll have to finish in a new post)
Post Edited (Labradorite) : 8/20/2016 8:20:10 PM (GMT-6)