Posted 9/1/2016 7:34 AM (GMT -6)
I had the same type of diagnosis as you in 2005 when I was 53 when I was diagnosed with CD in my colon. I had a lot of blood and white mucus in my BMs , a lot of D, two massive fistulas, and some pain in my gut.
I was also prescribed pentassa , but I went one step further. I did a lot of research on my own, and I decided to try something radical like changing my diet to the SCD diet.
Three months after starting the diet, the blood and mucus and D where completely gone. By 9 months my fistulas where also healed to the point where the surgeon had to remove the ctons so the could close. By 9 months I was 100% symptom free.
Surgeon and GI said they have never seen anything like it with fistulas as big as I had, completely healing up . They told me that what ever I was doing, just keep it up because it is working for you.
Since 2005, I have not had one flare, one fistula, one pain, one bad BM, nothing.
Even with no symptoms, I still took the pentassa up until last year when I had a colonoscopy and the GI said he found ABSOLUTELY no signs of CD anywhere in my colon and I can consider myself in permanent remission and I don't need to take it anymore. He can't say I am cured because in medical journals, CD is not curable.
I suggest reading the book "Breaking the Vicious Cycle" which describes in detail about the scd diet. This diet doesn't always work for everyone, but it seems to work best in newly diagnosed people like myself and you. In all aspects, what do you have to loose by trying? The secret to getting success with the diet is 100% fanatical AND I MEAN FANATICAL dedication. If you cheat on the diet and eat non diet foods sometimes, it will not work. Dedication is the key.
To this day, I still follow the SCD diet, but not as fanatical as before, and my colonoscopy proves that it worked for me.