(edited title 9/26 because that was a bad day and "quitter" was far from the right word). I like to make things work and push through discomfort be it physical or mental with a smile on my face unless I have concrete evidence that doing so is unnecessary or harmful. But remicade which I am currently blaming for my malaise just has me questioning how long I can go on like this. It has helped my crohns and kept it inactive for the last 5 months which is great. I am thrilled to not be doubled over with abdominal pain, losing weight, spending a lifetime in the bathroom or dealing with many of the other perks of crohns despite a few symptoms that have stuck around regardless of lack of disease activity and to back to work and slowly attempting to deal with all the work I need to catch up on. I want this to last many many years and I want to be grateful and happy for this time. But maybe my expectations were too high. I had about
2 really fantastic days towards the beginning of this when I felt fabulous, like I knew what it was like to be healthy and how I was when I was on humira, I could actually forget i had crohns on most days and that made me think that was how this would progress with remicade too. But nothing is a given and I wish I hadn't gotten my hopes so high. The constant body aches/joint pains especially in my knees and migraines with auras happen at least once a week but I have headaches and visual disturbances everyday that distort my ability to read or look at computer screens and it just knocks my positivity down and makes me kind of miserable. The hardest part though is not having any concrete evidence of a cause (yet) and being in this grey zone of it isn't life threatening and I can still kind of push through it but it's making me miserable, though I'd rather be this miserable than miserable with active disease so do I really have anything to complain about
, it could be so much worse. I am going for remicade this week and maybe that will help me come to some conclusion or give me some answers with blood work but I don't want to end a drug that is helping when the alternative maybe no better. For now learning to live in this grey zone of feeling "meh" is going to take time to accept. And today I'll just work on making it a good day despite all of this.
Thanks for reading my ramblings, I just needed to vent and put this down into words:)
Post Edited (Labradorite) : 9/26/2016 10:52:08 AM (GMT-6)