@beave - My brother, from what I can make out, has proctitis. He's always called it Crohn's and his docs seem to call it that as well. Whether he's ever had it any higher than the rectum I dunno. But I know in the past he was taking mesalazine suppositories. He also has taken oral mesalazine and azathioprine. It's mild in the sense that: he's never been hospitalised; he's never been on biologics; he's never had surgery; and he's never had (I'm pretty sure!) fistulas or abscesses. He's had his diagnosis for nearly 20 years now, so I don't suppose it's all that likely to take a severe turn now. Although ironically enough I thought his disease was worse than mine when I first got diagnosed: he had bloody diarrhoea and I had bogstandard non-bloody diarrhoea.
Thanks for that info. Like I said, no problem, I'm not offended at all so don't worry.
Crohn's in the rectum can be very different from small bowel Crohn's. It's as if they aren't even the same disease. While my disease is considered mild, I have been hospitalized twice - both in 2006, for a full week each time. I generally don't have diarrhea, but I've had a few times in the last 30 years where suddenly I will, pretty bad, for a few days or even a few weeks. Then it goes away, sometimes on its own and sometimes with the help of Entocort. My most consistent GI issue is that I just have no appetite in the mornings. I eat very conservatively earlier in the day, but usually by evening I can eat anything I want with no problems.
My small bowel Crohn's is weird in that it's almost more like how celiac disease can affect a person. Gastrointestinal issues aren't my primary issue. But I have really bad allergies, have had 8 sinus surgeries as mentioned, probably 100 sinus infections over a 15 year period; and I'm allergic to several antibiotics; and I have seborrheic dermatitis; and cholinergic urticaria (I get itchy and break out in hives anytime I get warm, including excercise, eating hot soup, laughing hard, being in a warm room, etc); and I have a sun sensitivity like people with lupus sometimes have, where I get sickly feeling with nausea and headache and fatigue if I go out in the sun. I also have bad panic attacks. And three ruptured discs in my back leading to chronic back pain. And I sleep about
12 hours a night. So it's like my intestinal issues are mild but my "extra-intestinal" issues are a huge burden.
It's not clear which of those, if any, are truly a result of having Crohn's, but I kind of feel like they are.
Post Edited (beave) : 2/18/2017 11:52:23 PM (GMT-7)