does this sound like crohn's or IBS?

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go star
Regular Member

Date Joined Apr 2017
Total Posts : 27
   Posted 4/15/2017 7:50 PM (GMT -7)   
ok so
in the past three years i have had chronic diarrhea
had some bleeding for awhile -- but not much-- with stool
also had problem with uncontrollable vomiting that led me in hospital for dehydration for 4 days

i have gone from 140 pounds to 101 in 3 years
in past 4 months have gone from 125 to 101-- i am 5'8 female. nearly emaciated. i cannot gain weight to save my life.
i did not see GI until few months ago

i have diarrhea multiple times per day; 5 - 10 times
have had 2 iodine CT scans that showed mild inflammation of colon wall
but negative colonoscopy and biopsies

my WBC is not that high. fluctuates from 8-13
currently near 10
neutrophiles level is around 71%
that is not that high i do not think

i am always sick -- for around 6 months

after colonoscopy (2 months ago)
i have neuropathy, chronic pain
feel as if i will collapse all the time

i am chronically fatigued. i have been dx with celiac with no tests and "possible appendicitis" in the past few days
i have had sinus / allergy problems that i never had before for 4-5 months--
have glossitis
and red bumps on legs that swell and resemble bruises but are not
skin rashes
have hard mass on right side of abdomen

i feel horrible and i do not know what is wrong with me. i just want to know what is making me so sick. i am getting really thin and cannot find the problem.
i hurt everywhere. swollen lymph nodes in throat. and under armpits.

Post Edited (go star) : 4/15/2017 9:22:01 PM (GMT-6)

Regular Member

Date Joined Nov 2015
Total Posts : 273
   Posted 4/15/2017 10:58 PM (GMT -7)   
I don't know how you could be diagnosed with Celiac Disease without any tests. I would demand the blood test and/or an endoscopy with biopsies (gold standard diagnostic for Celiac Disease) from your doctor if that is what he/she believes is going on.

go star
Regular Member

Date Joined Apr 2017
Total Posts : 27
   Posted 4/16/2017 1:44 AM (GMT -7)   
my GI did not diagnose.
it was a doctor i did not know when i went for pain in ER.
i do not think she really knew how to diagnose. i am not taking it as a diagnosis, but that i need to go back to the GI to find out what exactly is the issue.
i just do not understand how all of this pain that has now spread all over my body can just be IBS.
maybe it is with other symptoms from other problems i do not know.
but it is everyday i feel horrible. i have to take long baths with epsom salt to try to help my joint pain. i use capascin cream. anything i can find.
i make protein shakes with over 1500 calories each and eat about 4 times per day regular meals-- i still am losing weight . i feel like my body is shutting down. i am scared.

go star
Regular Member

Date Joined Apr 2017
Total Posts : 27
   Posted 4/16/2017 1:45 AM (GMT -7)   
thank you for your help and concern @noodlesnoodles

it helps to speak with people, even if i find out this is not my problem
i do not know
i just hope to find some sort of relief. x

Regular Member

Date Joined Nov 2015
Total Posts : 273
   Posted 4/16/2017 7:44 AM (GMT -7)   
When I first started experiencing symptoms years ago I didn't want to wait to get in to see the GI doc before testing for Celiac Disease. You can order the blood test online and pay out of pocket if you don't want think you can get a doc to order it right away. I went through Request a Test online and purchased the test called "Tissue Transglutaminase IgA" (cost is $69.00).

Once I got into a GI doc down the road, he ran the exact same test.

I know it can be hard to wait for answers so hopefully this helps a little.

go star
Regular Member

Date Joined Apr 2017
Total Posts : 27
   Posted 4/16/2017 7:58 AM (GMT -7)   
thank you smile
i am going to try it.
anything helps at this point.
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