Crohn's with no diarrhea or constipation?

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EMarks4714
New Member


Date Joined May 2017
Total Posts : 3
   Posted 5/23/2017 8:15 AM (GMT -6)   
Hi All. This is my first time posting. I'm currently in the middle of a 5+ week sickness, what I believe to be my first Crohn's flare up. I feel just horrible. The amount of anxiety I feel coupled with the physical symptoms are like no other. I know you all can relate. I've never experienced anxiety before, I'm 30, and now I know what it is for sure. I've been to 2 different GI docs. I'm suffering from abdominal and intestinal gurgling and noises every few minutes all day long. I go thru severe bouts of nausea for days. I've lost 20 lbs in a few months between a few different illnesses and limited appetite. I get stomach pain that sometimes radiates into my chest. I had a negative upper endoscopy. Negative CT scan. Blood work and stool tests which showed the high inflammation levels in my intestines synonymous with Crohn's. I've been told I need to get a colonoscopy to verify. So I'm not on any meds yet. I just need help/support from anyone going thru this. I'm scared to even get a colonoscopy. Any suggestions or comments would be greatly appreciated. I took prednisone for 30 days for a herniated disc in my back and I'm convinced it strongly lowered my immune system as I got several infections thereafter. So I'm scared of taking some of the meds they'd prescribe for Crohn's. I just find it so weird that I don't have diarrhea. If anything my stools are currently harder than normal. And I'm not constipated either. I've gone once a day for the last week. In the past I've had days where I go 4+ times but it's usually not diarrhea in those cases either. Thanks for any and all help on here!

mirowpl
Veteran Member


Date Joined Nov 2009
Total Posts : 527
   Posted 5/23/2017 3:45 PM (GMT -6)   
Welcome to the forum. Sorry you are going through this. Yes you can have it without those symptoms. I did! Go get the colonoscopy. It's the prep that's bad but is it the best way to know what is going on.

Good luck

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10559
   Posted 5/23/2017 4:11 PM (GMT -6)   
Yeah, it's very hard to get a Crohn's diagnosis without a colonoscopy. Blood/stool tests can test positive for inflammation, but they can't tell you what the source of the inflammation is. What stool test did you have? Was it faecal calprotectin? A high calprotectin result is usually automatic grounds for a colonoscopy.

As far as the pred is concerned, a 30-day course is quite short for pred. It's not a benign med but it's unlikely to have done much damage in 4 weeks, unless you already had a latent infection which pred made worse. I suspect between the herniated disc, active inflammation, and stress you were already pretty run down, which in turn made you more susceptible to catching infections.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

EMarks4714
New Member


Date Joined May 2017
Total Posts : 3
   Posted 5/23/2017 4:45 PM (GMT -6)   
Thank you for your input it's appreciated. The stool tests I did tested for several things. And strangely, my calprotectin level came out normal but my lactoferrin level, which is also a marker for inflammation in the intestines was sky high. Which is vbery strange since they are usually both high in Crohn's. The stool tests also checked for infections and I do have a high candida overgrowth (fungal infection) which is linked to the anxiety I'm feeling and obviously won't help, and 2 possible pathogenic high level bad bacteria that could be infecting as well. I am hopeful these infections are the cause of all my gut imbalances but I think that is just wishful thinking. However, my main symptoms are nausea and constant gurgling and noises in my stomach and intestines. I know I can still have Crohn's without the diarrhea or constipation, but also strange that I seem to feel better when eating a meal rather than feeling worse which seems typical. I have recently changed my diet completely, cut out most sugars and most carbohydrates completely, and started back on a probiotic to get the balance right. I'm hopeful this is the issue but from what I'm reading I do feel the diagnosis of Crohn's is a strong possibility. Thanks again for any and all responses.

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3465
   Posted 5/23/2017 9:48 PM (GMT -6)   
If you were on meds after the surgery and got several infections, then I'm assuming you had a bunch of antibiotics. I'm guessing it's more post-infectious IBS as opposed to actually Crohn's. But you need to get the colonoscopy ASAP. Honestly, people freak out about the idea because they rarely have surgery, go under anesthesia, etc. but a colonoscopy has got to be one of the easiest procedures there is.
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor

EMarks4714
New Member


Date Joined May 2017
Total Posts : 3
   Posted 5/23/2017 10:03 PM (GMT -6)   
Thanks. I didn't have surgery on my back just a herniated disc. But I did get a few different infections post prednisone including strep throat, bursitis in my elbow and the worst of all chronic prostatits. So yes I took 2 different antibiotics and maybe that messed my whole system up. But I really don't know. I have the inflammatory markers or antibodies or what have you in my blood test that is a big sign of Crohn's apparently. I'll be getting a colonoscopy next week. Going to see a different GI that has done them for my parents so I'll be more comfortable with him. I just had an upper endoscopy so I'm familiar with the quick anesthesia and quick procedure. I think it's just the prepping on the bowl for hours and the thought of what the procedure is that's got me. I'm definetly doing it but I'm not looking forward to it.

beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1827
   Posted 5/24/2017 12:22 AM (GMT -6)   
Do you know exactly which blood tests were done that show inflammation? Was it CRP? ESR? Something else?

And what dose of prednisone were you on for 30 days? That's not really that long of a time. It's true it can affect people differently, and if you were on a high dose then 30 days is enough for steroids to have negative consequences. But in the grand scheme of things, 30 days is considered a short-to-moderate length of time on steroids.

This *might* be Crohn's, but it could be lots of things really. Sorry that's not much help. The colonoscopy hopefully will give some answers.

Hedgehogs6
Regular Member


Date Joined Mar 2017
Total Posts : 61
   Posted 5/25/2017 4:54 PM (GMT -6)   
Hey you need a colonoscopy. Calproctecin test is non specific so even though its high it don't mean it's crohns. Mine was off the chart so I had severe inflammation and been told it was a severe infection and not crohns. You will only know with a colonoscopy and biopsies. My biopsies didn't show evidence of crohns and I then needed an MRI which was normal. You used to go to loo 4 times a day but I've told that crohns can change overtime. There's many things that mimic crohns and I hope you feel better soon xx

Hedgehogs6
Regular Member


Date Joined Mar 2017
Total Posts : 61
   Posted 5/25/2017 4:57 PM (GMT -6)   
I get the sane gurgling noises. All day. U could have IBS. Try avoid things like diary and wheat.
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