Oh man. I think I'm starting to flare. Well, this sucks. I hope it was just something I ate..... i felt it after dinner & had a purging bm at 2:30 am. Now just water & urgency. darn. My fault. Couldn't resist ice cream....but that was on Thurs. Friday I went twice, all formed. I hope things will settle. Can't tell you what joy it was to wake up & not have to run!!
Worst comes to worse I'll schedule Ivig which will help.
Thabk you. My 3rd infusion is Sept. I'll take Benadryl before.
Sometimes I dilute tea tree, other times I don't.
Clo---yes I have a question!! Does your CRS do LIfT procedures for complex fistulas? If so woukd he/she be willing to take on a Canadian fistula?
. I'm appalled that no fixes were offered to me. Only setons & we know how that turned out! Perhaps they don't do LiFTs here. I also found an Italian surgeon who fixes them using cryo -therapy.
I've taken a lorazepam. I've had several panic attacks since Thursday's fistula issue. Now I'm in a panic over this potential flare.
Post Edited (U B Tough) : 7/23/2017 7:42:36 AM (GMT-6)