I had my sixth infusion on the 1st August. Just going from symptoms alone, things don't feel like they've improved much
The worse symptom nowadays is pain. It's rarely terribly bad pain but by god is it chronic. I would have more right now, but I took some codeine about
2 hours ago, so that's dulled it. I also go through periods of excruciating butt burn, where I have to apply calmoseptine after every BM and it still burns like ****: I can't figure out why it's so much worse at some times than at others, since my day to day diet doesn't vary by that
much. And let's not get onto anal itching -_-.
I think I also have a degree of tenesmus, as often it's impossible for me to get everything out at once: I sit there, pass a bit, wait, pass a bit more, wait, pass a bit more. It drives me up the wall, but I have found from experience if I don't get it all out I end up regretting it (see: anal itching).
I haven't had any tests for a while (apart from blood tests), so I don't know how the Crohn's is internally. I'm hoping I'll have tests when I've been on Entyvio for a full year, which will be in November. I want to know what's going on tbh. I'm pretty sure the pain is not IBS pain.
The gardening group is good, thanks for asking! Unfortunately this weather - which is absolutely wretched even by UK summer standards - won't be doing the plants any good. I don't think my morning glory will like all this rain and cold
(I'm not exaggerating when I say it feels like winter: the other night I was so chilly I put the heating on for a couple of hours. In August that feels absolutely ridiculous.)
I doubt we'll see sun again this year but next year I'll try to take some photos. In winter it's pretty bare, but in early summer it was glorious.
Dx Crohn's in June 2000. (Yay )
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)