I had the weirdest thing happen two weeks ago. I was in Chicago visiting my dad. I had a long day traveling and also had terrible diarrhea that day and was pretty exhausted. It was about
11 PM and I suddenly got terrible lights flashing in my left eye. It felt like I had been staring at a ceiling fan for a long time. Even when I closed my eyes it wouldn't stop. I was a little worried about
retinal detachment, but I didn't want to disturb my family and make a big fuss, so I took a Xanax and went to sleep. I woke up the next morning with a migraine (and more D) that lasted all day, but the eye stuff stopped. My brother is an ER doc, and he thinks it was a precursor to my migraine. I've never had anything like it before!
Anyway, I also get eye pain and swelling when I am very tired along with blepharitis at times. My docs don't seem to relate it to Crohn's but I sometimes wonder!
BTW, I just got off the phone with my GI doc. I'm back to having pretty severe D again. The last time I took Vanco even with a negative stool test and it helped for about
a month, but then the symptoms slowly came back. We're going to try Vanco again for two weeks and see what happens. It does really seem like a bacterial infection.....very foul smelling explosive D, and I'm barely eating anything. (not to be too graphic) Anyway, the saga continues.........just keeping you company in misery if it helps at all
58 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Dx. with c.difficile 1/12, 10/14, 11/15, 1/16. Fecal transplant on 2/24/16, and so far, no more c.diff!
5/20/14: Ileo-colic resection surgery after stricturing and partial bowel obstruction.
Not currently on any Crohn's meds and in remission, but struggling with bad IBS.