Multiple vitamin deficiency

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minnietoty
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Date Joined Dec 2010
Total Posts : 2752
   Posted 8/28/2017 6:40 AM (GMT -7)   
I started lately to get toe, shin and calf cramps. They are very painful. I thought that it was magnesium/potassium deficiency and began to eat bananas. In a follow-up with my GI, I brought it up to his attention. He was alarmed and said this is vitamin deficiency. He prescribed weekly multivitamin injections and he stressed that it is highly important to take them now for a month in addition to a daily multivitamin. Then, I have to get back to him. I always thought that as long as I take a monthly B 12 injection, daily D3 spray and a daily energy booster, my vitamin intake was under control. It turned out I was mistaken. I'm now too in the middle of a flare up. Crohn's is really unpredictable.
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Cortiment, Nexium, Imuran, colifoam, monthly B12 inj.
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp.
Failed:Azathioprine (generic), Methotrexate

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10088
   Posted 8/28/2017 6:55 AM (GMT -7)   
Wouldn't it make more sense to have blood tests to confirm an actual deficiency first before putting you on vitamin injections? That said, if you eat a very limited diet (as you seem to), then taking a multivitamin pill is probably a sensible precautionary measure.

As for magnesium, try a spray. (I don't recommend magnesium pills 'cos they can have a laxative effect and cause diarrhoea, which is probably the last thing you want.) I use one on my legs sometimes. I hate the burning/itchy effect it has, but it does really calm my restless legs and I haven't had any cramps for a while either. If you get the burning, it wears off after about an hour in my experience.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2752
   Posted 8/28/2017 5:02 PM (GMT -7)   
You're right NCOT but it's my doctor's norm, whenever I complain of cramps, he feels alarmed and puts me on B complex injections. I always have this threat of peripheral neuropathy and this is his first line of treatment before any damage occurs. Actually, it's my fault. For almost 6 months now, I haven't taken any multivitamin. I always thought its effect is temporary so no need to take it.
What brand of magnesium do you take?
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Cortiment, Nexium, Imuran, colifoam, monthly B12 inj.
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp.
Failed:Azathioprine (generic), Methotrexate

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10088
   Posted 8/29/2017 7:46 AM (GMT -7)   
Minnie - this one.

/betteryou.com/magnesium-oil-original-spray

You can probably find it on sites like Amazon and eBay as well.

PS: The FAQ talks about 'tingling'. In my experience, it's much more unpleasant than just tingling, which wouldn't particularly bother me - it's actually more like a burning/stinging/itchy sensation. Dunno whether that's common or if I'm just unlucky. But it does wear off, so don't let that aspect of it put you off. It's less bad if you stagger the sprays and rub each one in thoroughly first, than if you just spray a whole load onto your skin at once.

Post Edited (NiceCupOfTea) : 8/29/2017 8:52:28 AM (GMT-6)


clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 716
   Posted 8/29/2017 8:55 PM (GMT -7)   
Minnie,

I was having the same issues. My GI ordered the test because I religiously take my vitamins...and it turned out I wasn't absorbing enough salt. Prior to that it was vitamin D and then potassium. ....

I had tried extra vitamins, eating bananas and avocados. ...you name it....and it was salt.

Now I eat a ton of salt but my body still has a hard time absorbing it. ...dunno what he is going to try next.

Hope you get it figured out.

Clo
06/12-07/14 symptoms start, no diagnosis.12/14 diagnosed UC & diverticulitis. 01/15 hosp- fistulas, DX changed to Crohns, 02/15 developed new skin rashes, eye problems and painful joints 06/15 Hosp.2x again.. new specialist.Said was worse case he's seen. 7/16 hosp 5mm Stricture stricturplasty to 15 mm.09/16 colostomy. Meds: Remicade, methtrexate, prednison,folic acid, vit D, calcium, pro biotic,

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6131
   Posted 8/31/2017 1:01 AM (GMT -7)   
Minnie, hey. I have a similar problem. low levels of most vitamins with the short gut. even with the vitamins that get added to my TPN I still go lowon lots. iron deficiency can be a factor in restless or painfull legs.. we/dr have figured out that when I complain of increasing leg jumps and pain, my iron gets checked and it has gotten too low again. now I am on schedule to just get iron infusions every other month to try and combat it. instead of waiting till it gets so low that I notice it.

I also take carbidopa/levodopa combo pill that works for the restless legs as well. but in much lower dose than if I did not do the iron.

also low in copper, magnesium, selenium, iron, potassium, manganese, sodium, all letter vitamins, except vitK for some reason. used to have to take it , was so low they were afraid id bleed if I was injured or something like a hemorrhage in the gut. (4 so far)

so lots of stuff to check, good luck.

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2752
   Posted 9/1/2017 4:36 PM (GMT -7)   
Dear all, thank you.

NCOT. I'll check this brand.
Clo and Randy. Unfortunately, we are all in the same boat. I do my best to make up for any deficiencies by taking supplements but still levels decline instead of rising up. For some unknown reason, our body fights to get better and shatters all our efforts to earth.
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Cortiment, Nexium, Imuran, colifoam, monthly B12 inj.
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp.
Failed:Azathioprine (generic), Methotrexate
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