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Bucko
Regular Member


Date Joined Nov 2015
Total Posts : 371
   Posted 8/28/2017 7:03 PM (GMT -7)   
At my last gi dr visit the PA said she didnt think i really had crohns. I was instructed to stop taking methotrexate. So thats what i did. Its now been a month. I have begun to have all the symptoms that i had back in 2014 prior to diagnosis of crohns. My symptoms are nausea, migraines, cramping (like labor pains) abdominal pain that radiates to my lower back, orange liquid stool, and rectal pain with inner spincter muscle spasms. So i emailed my real gi dr sunday night. Today the dr office called me and scheduled for me to be seen on wednesday for exam and bloodwork.

noodlesnoodles
Regular Member


Date Joined Nov 2015
Total Posts : 273
   Posted 8/28/2017 7:53 PM (GMT -7)   
Have you had a pill cam?
28 year old female
Issues began in July 2014
Capsule endoscopy in late March 2017 showed "suspected Crohn's Ileocolitis"
After colonoscopy on April 14, 2017, was officially diagnosed with Ulcerative Pancolitis (w/ backwash ileitis)
Current meds: Apriso 4 x daily, Prednisone 30 mg, Canasa 1000mg suppository nightly, B12 injections monthly, 50,000 IU Vit D weekly
Started Remicade July 11, 2017

Bucko
Regular Member


Date Joined Nov 2015
Total Posts : 371
   Posted 8/29/2017 5:03 AM (GMT -7)   
No pill cam. Insurance wouldnt pay for it until all other tests are done. Now my medicaid expires at the end of this month. Last night i woke up with pain chills and fever.

noodlesnoodles
Regular Member


Date Joined Nov 2015
Total Posts : 273
   Posted 8/29/2017 9:54 AM (GMT -7)   
I think in order to rule out Crohn's you really need a pill cam sad

Insurance can be so weird. My pill cam was totally free but I have to pay nearly $1,000 for a colonoscopy.
28 year old female
Issues began in July 2014
Capsule endoscopy in late March 2017 showed "suspected Crohn's Ileocolitis"
After colonoscopy on April 14, 2017, was officially diagnosed with Ulcerative Pancolitis (w/ backwash ileitis)
Current meds: Apriso 4 x daily, Prednisone 30 mg, Canasa 1000mg suppository nightly, B12 injections monthly, 50,000 IU Vit D weekly
Started Remicade July 11, 2017

Bucko
Regular Member


Date Joined Nov 2015
Total Posts : 371
   Posted 8/29/2017 2:57 PM (GMT -7)   
Noodles...i was diagnosed with crohns back in april 2015. It was confirmed by colonoscopy biopsies. So how can i not have crohns. My pain is getting worse. Thinking about going to er rather than wait for dr appt

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4385
   Posted 8/29/2017 3:47 PM (GMT -7)   
Yes, if your Crohn's was confirmed by biopsy, you still have a Crohn's diagnosis, but the question to be asking is whether you have active Crohn's now, or is it something else like an infection. If your medicaid is about to run out, going to ER might not be a bad idea. You can at least get blood work and maybe a stool culture ordered that way. They might do a CT, but they won't do a pill cam in the ER. If you have a GI appointment on Wednesday though, it might make more sense to try to wait until then so a GI doc as opposed to an ER doc is the one ordering tests.
58 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Dx. with c.difficile 1/12, 10/14, 11/15, 1/16. Fecal transplant on 2/24/16, and so far, no more c.diff!

5/20/14: Ileo-colic resection surgery after stricturing and partial bowel obstruction.
Not currently on any Crohn's meds and in remission, but struggling with bad IBS.

noodlesnoodles
Regular Member


Date Joined Nov 2015
Total Posts : 273
   Posted 8/29/2017 6:45 PM (GMT -7)   
Sorry, yes, I meant to rule out active Crohn's at the moment as a source of your symptoms.
28 year old female
Issues began in July 2014
Capsule endoscopy in late March 2017 showed "suspected Crohn's Ileocolitis"
After colonoscopy on April 14, 2017, was officially diagnosed with Ulcerative Pancolitis (w/ backwash ileitis)
Current meds: Apriso 4 x daily, Prednisone 30 mg, Canasa 1000mg suppository nightly, B12 injections monthly, 50,000 IU Vit D weekly
Started Remicade July 11, 2017

Bucko
Regular Member


Date Joined Nov 2015
Total Posts : 371
   Posted 8/30/2017 1:58 PM (GMT -7)   
Well i made it to my gi appt. And of course i saw a PA rather than dr. The dr order bloodwork and stool test. I have to wait til tomorrow for results. They think it might be an infection like cdiff since i was recently on antibiotics. They wouldnt give me anything for pain.

Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 993
   Posted 8/30/2017 2:30 PM (GMT -7)   
Why on earth do they have the PA doing the work of the doctor. That doesn't seem right to me. If you're health is stable that would be fine. I hope the stool tests give you some answers

Bucko
Regular Member


Date Joined Nov 2015
Total Posts : 371
   Posted 8/30/2017 8:10 PM (GMT -7)   
I just couldnt take the pain any more so i am in the er. The dr here is awsome. She said that she has seen a lot of crohns patients. My bloodwork showed low potassium and elevated wbc. So she gave me fluids potassium flagyl and cypro. And dilaudid for pain. I will be getting a ct scan soon. I finally feel like im getting the care i need.

huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 330
   Posted 8/31/2017 5:30 PM (GMT -7)   
Any update Bucko?
Official dx in TI 2007 with with obstruction and 10 day hospitalization.
mild to moderate since then - frequent colitis Also IBS.
2014/16 - rectocele repair, bladder sling, endometrial cyst attch'd to colon
2017 - Increasing flares / Inflamm in ilieum ("red"), new diverticulitis
Current Meds: Asacol. B12 shots /Prev: Pentasa, 6mp, Cipro, Pred

Bucko
Regular Member


Date Joined Nov 2015
Total Posts : 371
   Posted 8/31/2017 6:37 PM (GMT -7)   
Well i definately have a chrons flare. And an infection but its not cdiff. Im on prednisone cipro and dilaudid. I was very well taken care of in the er this time.
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