Is everyday colon tingling normal with crohn’s?

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Raffi
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 9/6/2017 3:01 PM (GMT -7)   
Just frustrated with this feeling it is soooo annoying like when you hear child’s cry but for 24/7, I am on imuran for 3.5 months now even not sure if it’s my crohn’s maybe I have something else, because 6 month ago my colonoscopy showed one ulcer which doesn’t make sense to me that it’s causing all this. My doctor is telling me I should not worry and doesn’t give me a straight forward answer he is the 3rd doctor and still not satisfied with the results anyone can help?

And does this feeling called a colon cramp ?

Raffi
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 9/7/2017 1:00 PM (GMT -7)   
hello ? no one able to give me a quick answer ? shakehead

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3296
   Posted 9/7/2017 1:04 PM (GMT -7)   
I just don't understand at all what you're asking. First you call it tingling, then you call it a colon cramp. I have no idea if you're talking about spasms, pain, burning, or what.
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor

Raffi
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 9/7/2017 1:08 PM (GMT -7)   
spasms mate, it just doesn't go away without medication it is just so annoying

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10020
   Posted 9/7/2017 1:11 PM (GMT -7)   
I agree with scifigal; I don't know what you mean by tingling colon either. Do you mean a bubbling sensation? If so, that would be gas moving around. Not much which can be done about that, apart from tinkering with your diet and trying to remove or limit foods which give you gas :/
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10020
   Posted 9/7/2017 1:13 PM (GMT -7)   
Spasms aren't remotely like tingling... I dunno. I get a lot of cramping and it is horrible, I admit. You could try an antispasmodic such as Bentyl - ask your doctor to prescribe you one.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

Raffi
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 9/7/2017 1:18 PM (GMT -7)   
sorry for confusing you guys :/, I am just unable to describe the feeling.

Do you mean there is no other way than medication ? like diet for example ?
Do you feel this way even if you are in remission ?

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10020
   Posted 9/7/2017 1:31 PM (GMT -7)   
Diet might help.

Sorry to be so vague - it really is different for everybody :/ Some people don't have any symptoms in remission, but it is pretty common for people to still have IBS-like symptoms even in remission (particularly after bowel surgery). Sometimes symptoms can settle down - they're not always permanent. In the meantime, all you can really do is try to find ways of managing them. Diet is one possible way - if you think a particular food gives you worse symptoms, try cutting it out for a while.

Stuff like herbal tea (or, for me, ordinary tea) or a heating pad applied to your stomach can be soothing. Lying on your side on a hard floor can help to shift stuck gas. Eventually you will find some methods to help you deal with your symptoms, and perhaps even drastically reduce them. But for now, try not to get overly stressed, as that won't help either :/

Raffi
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 9/7/2017 1:41 PM (GMT -7)   
No worries mate I just wanted some answers other than the doctors in my town, I just don’t feel that they care at all.

I always get the same answer which is your crohn’s is too mild you should be thankful. And I be like do you feel me bro I am miserable ?

I will try to cut off some food and try to find out which are the problematic ones as it is too hard to track these things.

I’m thankful to have you guys. People here are so kind and generous with their answers, I will try to speak more clearly next time.

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10020
   Posted 9/7/2017 2:05 PM (GMT -7)   
I think there are too many doctors who don't care, that's the problem. Even if nothing can be done, it still helps to have somebody who takes you seriously and empathises with you. Telling you should be thankful because your Crohn's is mild isn't helpful - just because somebody has it worse than you doesn't mean that you aren't suffering. Telling you to be thankful is just another way of not listening to you properly.

I was gonna suggest looking for a doctor beyond your town, but maybe best to leave it for a while. Your medical notes will travel with you, and it's better to avoid a reputation for 'doctor-shopping'. If in the future symptoms get worse and your local doctors are still useless, that will be the time to consider going further afield. But for now, there's not much even a really experienced and competent doctor could do, to be honest.

Good luck with the diet experimentation. Perhaps to make it simpler you could try a gluten-free diet for a few weeks, then, if that doesn't help, a dairy-free diet for a few weeks, etc. Best not to cut out multiple food groups at a time, unless you're desperate.

Raffi
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 9/7/2017 2:30 PM (GMT -7)   
Exactly that what is in my head I am really suffering even though my situation is considered mild medically.

Thank you so much mate it is a relief to read your answer will try my best and hopefully will get better and I hope the best for you and everyone here. :D

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15175
   Posted 9/7/2017 3:18 PM (GMT -7)   
Raffi, consider keeping a food diary to see if any one thing seems to set this off. It may sound boring but at least you can track your food intake better.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Raffi
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 9/7/2017 3:33 PM (GMT -7)   
Thank you straydog I will try to remember noting down things you know nothing easy at the beginning specially things we consider default in our brain like food :/

Raffi
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 9/18/2017 10:31 AM (GMT -7)   
Hello again, I just want to point out something I noticed lately, that my cramps are usually happening 95% of the time while I'm sitting and rested is there anything I can understand from this situation or that's just normal. I'm really desperate to stop it 😌

Bucko
Regular Member


Date Joined Nov 2015
Total Posts : 371
   Posted 9/18/2017 10:57 AM (GMT -7)   
Exactly where are the cramps occuring.
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