I am making a post on the forum in response to a thread I read on taking up BJJ with an ileostomy. Context might be useful though, so here's a brief medical bio. Please keep in mind I was 26 when this began:
2/2014: Total colectomy after sudden onset of pancolitis and 3 separate perforations (colon died), end ileostomy, 28 days in hospital, anemic, 12 units blood and 8 plasma, picc line, wound vac
5/ 2014: pneumonia, internal abscess under ribs, 10 days in hospital
8/2014: severe flu, 9 days in hospital
10/2014: restorative colectomy (jpouch surgery) hernia repair. 8 days hospital.
12/2014 fistula repair
2/2015: jpouch takedown.
4/2015: diagnosed PTSD
11/2016: 10" abscess behind jpouch, massive fistula
3/2016: loop ileostomy to allow jpouch to "heal" and JP drain. JP drain falls out 3 weeks later and cannot be reinserted.
7/2016: Jpouch excision, 2nd jpouch attempted, Crohn's Diagnosis, permenant loop ileostomy. 3 JP drains, not much small intestine left.
1/2017: Ambulance ride because of severe pancreatitis as a reaction to initial crohns treatment. Humira prescript
ion and bi-weekly injections.
All that happened.
And, After a few months of healthy relationship repair, a chance to practice my beloved martial art again, fighting in a regional tournament, and getting a gym membership:
I am in the best shape I've ever been in. I work every day, workout 6 days a week, and can physically do more now than I ever could before I got sick.
If you're reading this, please, don't lose hope.
Ive come to believe that having a chronic disease is in a special way a great challenge; something like being tasked with fighting a tremendous battle for your own life in the presence of people whom despite their best intentions cannot understand your situation. It took a long time, but I finally realized that part was not so bad. I doubt a normal person knows what it's like to be Bo Jackson or Ronda Rousey either, but that has probably never been important to them 😊
Try your best for today, and let that be enough. Do more tomorrow if you can. Time is all we have.
And to the other poor guy looking to start BJJ that got told having an ileostomy meant stinking like a sewer and being crippled for life:
I hope to meet you on the training floor one day, cause that's exactly where I'll be.
Post Edited (Michael Lindsay) : 9/11/2017 7:05:21 PM (GMT-6)