Fistulas suck! Since this latest massive abscess I've been dealing with bladder accidents.
My bowel has gone from twice daily to 5 with greater urgency. Just had my 3rd Stelara injection on Wed.
Wondering if true remission will ever find me or if I'll just be managing my disease forever.
Good news: I returned to ballet after a years absence due to fistulas etc!! Was really, really hard. Only managed the barre but I'm proud of myself
IVIG (on hold)
UC/Crohns - tested positive for MAP antibodies & mycobacterium
chronic perianal abscess and fistulas. Failed setons...it was pure torture.
started Stelara May 24, 2017. 100mg imuran
Hoping to start Anti-MAP drugs soon
Had a 10 week reprieve, now flaring...again. 4 years of flaring is tiresome.