I'm here Clo and NCOT!!
Priorities first: my dog!! Roxie is a darling 11 year old blond and white american cocker spaniel. I've had her since she was 9 weeks old. Sadly, she went stone deaf when I was in hospital over 6 weeks. She doesn't care as she's as sweet and happy as can be. I'm teaching her hand signals so at least she can "come when called." The weather in Toronto has been no short of stifling over these last 2 weeks...plus 95 degrees so we haven't done too much park runs but somehow she's very content. I get envious of her perfect poops and her ability to eat raw veggies!! Wish I could show you a pic. The crazy thing is that she always knows when I'm really sick or about
to be. She's not a cuddly lap dog by any means but when I'm sick she lays down on my legs or tummy.
Regarding Stelara, my bowels are doing well all things considered. 1-4 formed, but with morning urgency. I've been experimenting with more foods and have some troubles this week but I don't think I'm heading backwards. Yesterday, I spent the day at the beach!! In my bikini....who cares about
my scarred up legs??? Today I'm beyond exhausted though and feeling down that a beach trip wipes me out (unlike those darn healthy people!) I did catch a virus last week just following my shot so no ballet. Tomorrow (aka TUTU Thursdays) I have IVIG so I won't go either. Next week.
I'm getting yet another abscess and am fearful of the pain and ending up back in ER. I have 2 appointments with 2 different CRS in October. I hope they will do a LIFT. I still don't have any support for the vaginal pain I'm in
But I'm pretty sure the RVF has closed...again....
Clo: how are you doing on metho? Do you find that it's worth all the side effects?
NCOT: yes, it's better to ask and be a friend then not to ask. Did you connect with CCF? How are you sleeping? I hope you can get on Stelara soon....
socializing and a vicious cycle of depression and isolation. You can only do what you can when you can. sorry about
the cliche;) Are you watching anything good on Netflix?
IVIG (on hold)
UC/Crohns - tested positive for MAP antibodies & mycobacterium
chronic perianal abscess and fistulas. Failed setons...it was pure torture.
started Stelara May 24, 2017. 100mg imuran
Hoping to start Anti-MAP drugs soon
Had a 10 week reprieve, now flaring...again. 4 years of flaring is tiresome.