Just losing interest in food altogether...

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ragbag
Regular Member


Date Joined Sep 2003
Total Posts : 120
   Posted 10/3/2017 10:03 AM (GMT -7)   
Lately I just have no interest in eating much. Meat just kind of disgusts me. My weight is holding, even though I eat so little.
Eggs, smoothies, cottage cheese, toast, yogurt, cereal, rice, soup now and then, sometimes a little turkey breast lunchmeat or tuna or if I have to, chicken, don't eat a lot of veggies. I have always pretty much been on a low residue low fiber diet since being diagnosed and have done well.
I pretty much live on the same stuff everyday. I always feel pretty hungry, never really feeling that satisfaction of being full, and I don't have a lot of energy. I don't overeat so that I don't have to worry if I am going to have a good day or bad day from actually enjoying too much food because then I feel very ashamed for causing it. I don't enjoy eating at all anymore.
My crohns has been very unpredictable lately, I may be a little stressed, a little down in the dumps. I am just so tired of counting every Cracker or piece of fruit or whatever it is I am eating. i have had crohns for many years, but it just seems lately that I dread eating and actually feel guilty for wanting a treat now and then. What in the world. This is no fun. Does anyone or everyone feel like this? Thank you for your time.

Post Edited (ragbag) : 10/3/2017 11:33:37 AM (GMT-6)


Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 991
   Posted 10/3/2017 11:21 AM (GMT -7)   
Hi ragbag, I completely get it! I have dealt with issues like that in the past and even though Crohns is under control for me now, my issues with GERD have made eating very stressful. I eat too little i loose weight, i eat too much i have to deal with chest and neck pain all day. Eat too many veggies the GERD gets better but the intestines go on over drive. too little and the GERD gets worse. Its exhausting. Best thing you can do is get in touch with your doctors because you should be able to eat more and you need to get through feel ashamed. it is not your fault. We all need food! Find out where you stand with inflammation wise. What meds are you on? See if they can recommend a good nutritionist that might be able to make some suggestions.

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10083
   Posted 10/3/2017 2:48 PM (GMT -7)   
I feel much the same way to be honest. I used to be well into food, but now I've lost all interest in cooking, recipes, and even eating. I still have a normal appetite and I still get hungry, but there are days when I wish I could have a respite from it all and just pop a pill which nourishes you and makes you feel full. I feel both physically and mentally better when my bowels are empty, but most of the time they aren't, as food just doesn't pass through me that quickly.

I wouldn't feel guilty for being hungry and wanting a treat - that's absolutely normal and if it wasn't for the Crohn's, you could eat freely. I agree with Lab about getting checked out for inflammation though; it sounds like you are probably not in remission at the moment, in which case your treatment needs to be looked at.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4384
   Posted 10/3/2017 4:08 PM (GMT -7)   
I'm supposedly in remission, but I'm right there with you! I do ok when I eat my boring foods at home.(Pretty similar to your diet, except now I think I'm lactose intolerant) But the last several times I've tried to go out to a restaurant I get sick afterward, even when I'm trying to be careful. This morning I had a small D accident in my bed and it made me cry! I went out to lunch yesterday with my husband and had bad D all day today.

Going out to eat has always been a social activity for me, and now I dread it! My book club friends want to go out to eat next week for dinner. They wanted to go to a pizza place where the only things on the menu are pizza, greasy fried foods or salad, all which I can't eat. I got them to switch the restaurant, but now I'm regretting saying anything because I don't think I can really eat anywhere! It's all very frustrating.

My doc thinks this is all IBS, and he might very well be right, but I did convince him to at least run some blood tests to look at anemia, inflammation markers, and B-12 and D. I had a very different picture of "remission" and it's all really depressing!

I don't ever feel guilty though....I blame my stupid guts and this rotten disease, but I don't blame myself. I hope your doc can help, and sorry I don't really have any good suggestions.....just hanging out in the boat with you smile
58 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Dx. with c.difficile 1/12, 10/14, 11/15, 1/16. Fecal transplant on 2/24/16, and so far, no more c.diff!

5/20/14: Ileo-colic resection surgery after stricturing and partial bowel obstruction.
Not currently on any Crohn's meds and in remission, but struggling with bad IBS.

ragbag
Regular Member


Date Joined Sep 2003
Total Posts : 120
   Posted 10/3/2017 10:42 PM (GMT -7)   
Thank you all for such helpful info. I am going to my gastroenterologist in two weeks and will discuss my concerns with her. I have been on pentasa since 1998 when diagnosed with crohns.
Labradorite, I think you are right about the nutritionist, I feel very restricted and maybe they can make my menu bigger.
Nicecupoftea...an entire satisfying meal in a pill would be amazing. I eat because I have to, not because I enjoy it. No more cooking! My hubby cooks for himself most of the time. He likes spicy, meaty, zesty meals and loves to eat.
Gumby, whenever we are out and lunch is mentioned I dread it because there must always be a big decision of where to go, but because I am so limited it always turns out to be one of maybe three choices, and I can only eat so many cheese omelets. Some people we used to occasionally go out to eat with don't even invite us anymore because it has to be boring for them. My husband has always been very supportive, never complaining, very understanding.
I do often feel guilty though because crohns really runs the show and Is just plain tiring. If I have a bad day I am often asked "what did you eat" or "what do you think caused that" ...well........................................I HAVE CROHNS...and you just never know what each new day will bring. Yuck.
Thank you for sharing suggestions and stories and hanging out with me. 🙃

Stevo68
Regular Member


Date Joined Jun 2011
Total Posts : 59
   Posted 10/5/2017 3:25 PM (GMT -7)   
I've lost 35 pounds since April. I want to eat, but it's not worth the pain of a bowel movement. I mean, I love food. I used to live to eat.

That said, I've been a yoyo dieter my whole life and I can tell you, you get used to bland food and after a while, your taste buds will come back so that even plain toast has flavor. Honestly, it will happen. Plain, "bland" foods just start tasting good. That said, I would try to eat less dairy as I understand that is an inflammatory food and that's bad.
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