As to your B12 level. If you were in Europe, that would be considered very low. I believe they use 400 as the bottom on normal. I had a neurologist that was very concerned when my level was 240 and the PCP and GI didn't think treatment was necessary. At the time I had significant neuropathy. The neuro had me first try taking sublingual methylcobolamin. I actually could absorb it that way and got my levels up.
Not in the UK unfortunately. I think it varies slightly from lab to lab, but around 200 is the bottom of the normal range. As my B12 has been between 200 and 300 every time it's been tested (not very often), I've never been considered to be clinically deficient in B12. I've been taking a vitamin B12 spray this year, so I dunno what my B12 levels are now. But I get the distinct impression that UK GIs don't take B12 very seriously.
With Dr. Rubin, I was asking a bunch of questions, and her literally said to me "I'm the doctor. You're the patient. I'll listen to your symptoms and tell you what to do. You don't need to choose what to do." It rubbed me the wrong way.
That would proper wind me up. He wouldn't be my doctor for long with an attitude like that. I'm sure he's super duper qualified and all the rest of it, but I just couldn't hack the god complex. I've also not always had typical Crohn's symptoms, and am bad at explaining the symptoms I do have, so I would be worried about
being fobbed off on the basis of symptoms alone.
I am about a 6-7 hour drive away from Chicago, so I really need my local GI involved
Flipping heck. That would be the equivalent of me driving to Scotland from London. People at my Crohn's hospital think I come from far away when I tell them where I live - it's about
a 45 minute drive away! It's not ideal (particularly when my local hospital is within walking distance of me -_-), but it is the much better hospital for IBD. Better doctors, better funded, etc.
Post Edited (NiceCupOfTea) : 10/6/2017 6:02:55 PM (GMT-6)