Total Colectomy with ileorectal anastomosis

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sugarfoot
Regular Member


Date Joined Jul 2005
Total Posts : 141
   Posted 10/6/2017 7:36 AM (GMT -7)   
Hi,

I haven't posted here in years. I'm 34, dx with Crohn's at 21. All is well in that area, things have been pretty quiet for years.

However, my annual colonoscopies have shown an increasing number of polyps over the years with the last one showing "thousands".

All genetic testing has come back negative so they don't know *why* they're happening, but they're all pre-cancerous & to the point that there are too many to remove via colonoscopy.

At my GI's suggestion, I've met with 2 surgeons & both agree a total colectomy with ileorectal anastomosis is the best option as the polyps (& crohn's) have always been in my colon.

I'm looking for stories of people that have been through it. Tell me what to expect. I have a 3 year old & a 4 month old.

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10085
   Posted 10/6/2017 12:27 PM (GMT -7)   
I have an ileorectal anastomosis but I had an ileostomy for a couple of years first. My colon was removed due to severe Crohn's, not polyps however.

Is your surgeon going to give you a temporary stoma first or hook you up in one operation?

I got unlucky after my reconnection. I developed an ileus (paralysis of the bowel) right after the operation, which kept me in hospital for nearly 2 weeks and was hell on earth. Then shortly after that the Crohn's came back, so I didn't get much of a break really.

Hopefully it will go much more smoothly for you. You are gonna have a lot more BMs at first, but that should settle down over the following weeks and months - keep some calmoseptine or other ointment cream near the toilet. Keep to a bland low-residue diet for at least 6 weeks while the bowels heal - they will be sore and swollen for a while. Eventually you can expect to end up having anything from 4-8 soft BMs a day. It sounds a lot, but if there's no inflammation there won't be any urgency, bleeding or pain, which makes a massive difference. But yeah, without a colon, you'll never be able to have 1 solid BM a day ever again.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

sugarfoot
Regular Member


Date Joined Jul 2005
Total Posts : 141
   Posted 10/10/2017 9:19 AM (GMT -7)   
Thanks for the reply!

The plan is a straight connection without stoma, if all goes well. Fingers crossed.

I can handle several bathroom trips if they're without urgency. Did you have to change your diet after the initial healing period? I eat a lot of salads & raw veggies. I'm wondering if their days are numbered.

How old were you when you had your surgery?

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10085
   Posted 10/10/2017 3:05 PM (GMT -7)   
Oops, almost missed this.

You should be able to eat salads and raw veggies once everything is healed up, but I would introduce them fairly slowly and cautiously - try a small salad or a couple of raw veggies first of all before jumping into a massive salad. I mostly avoid salads and vegetables now - more than I did with a stoma. But I have active Crohn's, which makes a difference. I used to be able to eat everything, even with Crohn's, but that was before I had a stricture, bowel surgery, etc. My bowels are not what they were.

I was 40 when I had my surgery.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)
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