Thank you for the messages. I'm sorry for the delayed response, especially to you Clo as I know you are worried. It's been quite the week. I wasn't able to attend Thanksgiving festivities because of the heartburn. The indigestion was so bad I was burping ike a truck driver! The pain was so bad I can't describe it. Then I started vomiting. On top of this the weakness I felt was so intense that tears were just streaming down my face. I think the weakness is from the IVIG. Perhaps it's interacting with the Stelara. My bowel is ok, although I'm hesitiant to say anything really. 3 times a day, softly formed but the urgency is terrible....4 accidents, all on my bathroom rug!!
I was trying everything....pepto, tecta, ranatidine (sp?), peppermint...all at once. I wasn't able to eat or even sip water for 3 days. It's better now but still an issue. I'm eating a potatoe and a little chicken in the afternoon plus sipping ensure, No way I could handle breakfast! I haven't had any tests as I don't see my GI until Nov. I asked for an endo when I was on my extended hospital stay but I was refused; even though he was doing a colonoscopy at the same time. I hope my crohns hasn't spread to the esophagus.
And as if this wasn't enough, my dog suddenly became very sick with pancreatitis and possible cushing disease....plus my car broke down so I'm here at the mechanics. UGH. Life!
Minnie---if I remember correctly you are writing your phd thesis. How is is going?
Clo-- how are you doing?
IVIG (on hold)
UC/Crohns - tested positive for MAP antibodies & mycobacterium
chronic perianal abscess and fistulas. Failed setons...it was pure torture.
started Stelara May 24, 2017. 100mg imuran
Hoping to start Anti-MAP drugs soon
Had a 10 week reprieve, now flaring...again. 4 years of flaring is tiresome.