I am sorry, that is awful. I really think you should see about
going to see a surgeon who is the BEST possible and at least getting the records reviewed. It would be good to find out what is actually going on inside your body, and why things are so difficult. I have lived with the ostomy bag, and I was also a little bit self-conscious, but you learn what works and what doesn't so far as clothing. You find something to wear to swim, and ride bicycles. Was the ostomy any easier for you, aside from the "hiding" the bag? Have you tried calmoseptine for a protectant? Is the burning something fungal? have you had it looked at? I've had a fungal infection on my butt and I had to get prescript
ion cream. You really need a good team, that will work with you, and be compassionate of your needs, to get things headed in a positive direction for you. You're so young, you have your whole life ahead of you. I hope you have a good support system at home. Unfortunately, you have to fight to get what you need. In the end, we all have to advocate for yourselves. Let me know if I can help.
Moderator: UCCurrently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish